Dystonia is a movement disorder that makes muscles contract, sometimes regularly, sometimes randomly. It can cause abnormal, often repetitive, movements, postures or both.
Like others, this disease does not age discriminate; the age grouping is as follows:
Dystonia classification by age
- Childhood onset – 0 to age 12
- Adolescent onset – age 13 to 20
- Adult onset – older than age 20
The earlier a person develops symptoms, the more body parts are likely to be involved. So it may help if those symptoms are somehow disrupted ASAP after diagnosis.
Deep brain stimulation (DBS) is a well-established management for the disease in children. According to one study, most children with secondary types of dystonia – including static lesions and progressive disorders – are well served by DBS but do have a reduced response to the treatment.
Adding up the equation: dystonia + children + deep brain stimulation = brain surgery. Whoa! I had to investigate this for myself.
All the electrical impulses are regulated by a remote control. The remote control helps scramble the signals in the brain and change the conversations to improve the symptoms for the child.
A smidgeon of skepticism?
Me too until I watched Dystonia Boy and listened to his claims of DBS making him happy!
Have you tried Deep Brain Stimulation (DBS)? What is your experience or reaction? Share in the comments below!