How Does This Word Cloud Capture Your Life with Acromegaly?

Describing your acromegaly isn’t easy. I’m sure you’ve been met with enough blank stares or uncomfortable jokes about “giants” to last a lifetime.

Fact is, sometimes people will not get the picture about life with a rare disease until you actually give them a picture. A real one.

The pharmaceutical company Novartis, which makes Signifor LAR for the treatment of acromegaly (and apparently has a Pinterest page?) released an infographic called “A Day in My Shoes.”

It’s less an infographic, though, and more a word cloud. Made up of words like “optimistic,” “awareness,” uncertainty,” “disfigured,” and “relief,” it effectively captures the ups, downs, dreams, and desires of everyone with acromegaly.

word cloud acromegaly
For those who don’t know, “word clouds” are graphics generated by analyzing the words most commonly used to describe something. The size of the words indicate how frequently they are used (i.e., the largest word is the one that’s most frequently used).

It’s simple, sure, but sometimes simple is best—especially when it comes to conveying the heart behind a medical condition.

If you have acromegaly and have struggled to explain what this condition means to you to friends, family, coworkers, whomever, try sharing this link.

Open up the discussion, and maybe, your cloud will float a little higher.

Kiki Jones

Kiki Jones

Kiki’s family loves to say, “People are like a baking project. At some point, they’re just done and they’re who they’re going to be.” Well, Kiki still has some baking to do, and she learns a lot from her loved ones living with chronic conditions, including mental illness and Behcet’s disease. With a BA in English, she’s using her skills to tell the stories of people like them.

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