WANTED: How to Suck the Power Out of Boring Scientific Presentations

Well, for anyone who’s looking for information about neuromyelitis optica (NMO) or what’s also known as Devic’s disease or Devic’s syndrome—AND who happens to have a spare 45 minutes on their hands… uh… maybe for torture—here’s a DARE for you!

If you or a loved one suspects you have NMO and are concerned because it’s one of those rare diseases that also happens to mimic multiple sclerosis, go ahead. I dare you—and with good reason…

This evening, after trying to gather more information about NMO for a friend of mine, I combed the Internet, trolling for reliable content… and unfortunately clicked on the very thing, a webinar from Chugai Pharma, that I shouldn’t have.

But hey. I was an innocent.

That webinar has changed me forever, and I fear not for the better! Source: www.giphy.com

Almost instantly, in the words of Dr. Smith, a character from the 1960s TV hit, Lost in Space, “Oh the pain.” I wanted to belt out and scream because the webinar was so not patient-friendly. Indeed it was painful to slug along, trying to follow… and here’s why:

The webinar is over 45 minutes long and includes a questions and answer session along with introductions. (No, I don’t have a problem with that.)

But what I do have a problem with is that the information on NMO is presented so poorly, so clinically, and so boringly that I simply could not continue.

Source: www.giphy.com

I have a major problem with that. In fact, I would applaud anyone who could make sense of the information—who isn’t a clinician, doctor, or healthcare professional, etc.

They should state who the webinar is for, right?! And if I understand this correctly, Chugai Pharma partnered with the Cleveland Clinic, (and potentially the Guthy-Jackson Foundation?) who I have mad respect for, which to me, means that the content as well as the way it’s presented should be at least somewhat patient-friendly, right?!

And as if I couldn’t get enough pain for one evening, I decided to visit Chugai Pharmaceuticals home page and was again deeply disappointed.

And ultimately, I got so ticked off because the information in both instances was so UNpatient-friendly, I decided to give it a rest and let it go.

Oh yeah, I’ll still keep researching, but it won’t be on those sites.


Alisha Stone

Alisha Stone

Alisha Stone has a BA in psychology and is dedicated to improving the lives of others living with chronic illnesses.

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