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According to a recent article in The Scientist, Northwestern Medicine’s successful autoimmune and immunotherapy program is winding down and will be closed by the end of the year. The program,…
We love a good story about a community coming together! Firefighters across the Atlanta area came together to support a retired fire chief who has been partly paralyzed after being…
According to a publication at Markets Insider, the Food and Drug Administration (FDA) recently approved Soliris (eculizumab) as a treatment for neuromyelitis optica spectrum disorder. The approval marks the first…
Japanese drugmaker Chugai now has two positive phase 3 studies backing the efficacy and safety of the antibody satralizumab to treat neuromyelitis optica spectrum disorder (NMOSD). Great news for the patient community of…
This is not a warning, but some friendly advice: Start planning for next year and mark your calendar for February 28, 2018—it’s world Rare Disease Day! It’s the day that…
Devic's disease, also known as neuromyelitis optica (NMO), affects the spinal cord and the optic nerves. It is a relapsing-remitting disease, meaning its symptoms can appear and disappear. In NMO,…
Well, for anyone who's looking for information about neuromyelitis optica (NMO) or what’s also known as Devic’s disease or Devic’s syndrome—AND who happens to have a spare 45 minutes on…
In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…
I just watched a YouTube video, posted by a sweet red-headed, freckly-faced teenager, who is living with neuromyelitis optica (NMO). NMO is a rare autoimmune, demyelinating disease that attacks people…
I am digging the Guthy-Jackson Charitable Foundation! When their teenage daughter was diagnosed with neuromyelitis optica (NMO), which is a rare, demyelinating, autoimmune disease that can be life-threatening, parents Victoria…
“In the pipeline” means something pretty special for people living with rare diseases that have no cure, such as neuromyelitis optica (NMO or Devic disease). Far from the divisive protests…
In today’s research world, the practice of teamwork has gained in popularity. This is especially true for researchers who work to better understand Neuromyelitis optica (NMO). NMO is an uncommon…
OMG. It’s a Friday afternoon and as I’m sitting here, my heart is breaking for people with neuromyelitis optica, a very rare disease that use to be considered a rare…
Most everyone these days has heard about multiple sclerosis (MS) but aren’t so familiar with neuromyelitis optica (NMO), which is also called Devic’s disease or Devic’s syndrome. What’s so important…
If you’re a fan of the TV show MasterChef USA, you may remember Christina Ha, the contestant that cooked her way into our hearts—and into the winner’s circle!—despite the fact…
Optic neuromyelitis, also known as Devic's disease, is a rare disorder that affects the eyes and spinal cord. It occurs in approximately one in five out of 100,000 people, and…
In an effort to learn more about neuromyelitis optica (NMO)—a chronic illness also known as Devic’s syndrome or Devic’s disease—I tuned into another YouTube video of a PhD. He'd been…
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