Tuesday, February 28th is Rare Disease Day. And while we will be at #RDDNIH on the 27th, you can participate in Rare Disease Day from anywhere in the U.S.! Check out some…
This Friday, February third is The American Heart Association's National Wear Red Day® for women's heart health! It will mark the 15th anniversary since the inception of this fundraiser. According the…
Pharmaceutical companies Takeda and Ovid have agreed to work together to develop a new drug for rare pediatric epilepsies. The continued development of Takeda’s compound TAK-935 will be shared by…
Lying in bed this spectacularly beautiful fall Sunday morning—with my gently-snoring cat, Thelma, I feel so relaxed gazing out the window, watching ruby red leaves fluttering in the wind. But…
We want to celebrate our patient contributors and writers for their efforts in helping the rare community by bringing awareness, understanding and compassion to often neglected disease. The following article…
Si usted vive en Connecticut, y sucede que tiene una enfermedad rara, se están haciendo esfuerzos para ayudar a que su voz sea escuchada. Cuando usted es uno de muy…
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