If This Man Can Write a Book About Dystonia, So Can You!

I’m a firm believer in the fact that everyone has a story. Sure, the sentiment is a little corny. But that doesn’t make it any less true.

That’s why I think it’s awesome that Jonathan, 52, has started writing a book about living with dystonia.

Jonathan’s not a writer by trade. Five years ago, when he first noticed the effects of dystonia, he was welding parts for radar systems. I don’t know much about building radar systems, but I can guess it’s pretty different from writing.

Right? Yeah? Let’s go with it. Source: www.giphy.com

That hasn’t deterred Jonathan from writing, just as dystonia hasn’t deterred him from living. He told the Gazette and Herald:

“At times it has been hell on earth, but I never give up hope and have taken this as an adventure into the unknown.”

A little about dystonia:

  • It’s a neurological movement disorder
  • It causes uncontrollable muscle spasms
  • There are several types – Jonathan’s cervical dystonia caused an unignorable head shake

Dystonia has changed Jonathan’s life. He can no longer work in welding. He has neck pain. Sometimes, he can’t sleep. The shaking affects his balance.

Fortunately, a Deep Brain Stimulation (DBS) operation has helped reduce some of the shaking, and Jonathan stays consistently positive. He’s raising money for the Dystonia Society, as well as awareness through conversation and, of course, his book.

I think we can all learn a lesson from Jonathan.

Never be afraid to share your story—to talk about your experiences and write about them.

You don’t have to write a book (although, by all means, go for it). You can start a blog. You can journal. You can post a status update on Facebook or type 140 characters on Twitter.

Just write what you know. Get it out there.

Chances are, there’s someone out there who can relate; not to mention, there’s plenty of people who care to learn more.

Your story matters.


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