How to Build a CF Care Team That Rocks

You want to know what one of the important things a parent or caregiver for someone living with cystic fibrosis (CF) can do? It’s accept responsibility for managing the patient’s healthcare team.

For many, that’s easier said than done because of all the “moving parts” of a CF care team.

cystic fibrosis
Always make sure EVERYONE on your team is communicating with everyone else. It could save your child’s life! [Source:]
Take a look at this lineup.

  • The Person Living with CF
  • Your CF Nurse
  • Your CF Doctor
  • Your CF Dietitian
  • Your CF Social Worker
  • Your CF Psychologist
  • Your CF Respiratory Therapist
  • Your CF Physical Therapist
  • Your CF Pharmacist
  • Your CF Research Coordinator
  • Other Physician Specialists: Otolaryngologist, gastroenterologist, and/or endocrinologist
  • Health Care Professionals in Training: Fellows, medical students, and/or residents
  • Genetic Counselors

It’s important to question and understand the needs and roles for each of the cystic fibrosis care team members. That’s why this website is a great resource to give you the depth and breadth of the CF team.

Collaborate & Cooperate

Imagine if your very life depended upon teamwork?

If you’ve had experience in a healthcare setting, it just might!

Teamwork in healthcare is vitally important to patient treatment, care and safety. The better the members of a healthcare team are able to work together, the better they are able to provide the best quality patient care possible. With that given, the better a parent or caregiver can manage the care lineup, then the benefits to the patient can be unlimited.

Health teams are often made up of a variety of professionals, each with specialized knowledge and responsible for different tasks—interacting interdependently with a common purpose:

  • Seek the same goal
  • Foster communication
  • Prevent medical errors

The connection that a patient feels with his or her clinician can ultimately improve their health mediated through participation in their care and adherence to treatment. And with such an extensive care team to navigate, it’s good to know there are resources to help.

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