It's getting hot out there... So you may as well read some news while staying cool inside if you're in the US! This week we have news on Senator John…
A new biotech company in Philadelphia called Enterin announced recently that their company has raised a whopping $12.7 million to support the hypothesis that Parkinson's disease starts in the gut,…
In early July of this year, the pharmaceutical company Bristol-Myers Squibb announced that the FDA approved of their new treatment, called abatacept (Orencia), either intravenously or subcutaneously. This drug is…
Earlier this month, Vertex Pharmaceuticals released big news regarding a new development in cystic fibrosis treatment. The pharmaceutical company announced that their new, innovative technique in treating the disease had…
The United Leukodystrophy Foundation is hosting two two-day long events for families and medical professionals! Here's all you need to know about it before registering: What: Cocktail reception and dinner, fascinating…
In my opinion, Sam Berns is the face of progeria. I first saw his inspirational Ted Talk, “My philosophy for a happy life,” a couple of years ago, but then…
Choroideremia is a disorder that progressively causes you to lose your sight. There is no cure. According to Pinstriped Prospects earlier this year, Markie DeVoe is a 12-year-old living with the…
The Tampa Pig Jig is an annual fundraiser fair held to support NephCure Kidney International, which is a nonprofit that focuses on funding research for Focal Segmental Glomerulosclerosis (FSGS). FSGS…
A mother’s love is like no other. But being told your child will be born with a rare and serious medical condition can be overwhelming. Especially when there’s no cure,…
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