Editor’s Choice: Survivor Status and Orphan Status are Both Good Signs in the Rare Disease World

Happy Friday!

This week, we have a story that might break your heart about a woman who battled cystic fibrosis. But we also have a story that might inspire you about a multiple myeloma survivor.

There’s also some good news on the status of a potential IPF treatment! And further proof that dogs really are man’s best friend.

So sit back and enjoy this week’s Editor’s Choice.


Orphan Drug Status Given to a New and Upcoming IPF Treatment

Good news for the IPF Community!

Check it out here!


“Anyone Who Survives a Year with Multiple Myeloma is the Survivor of the Year”

This “Survivor of the Year” has overcome more than his diagnosis.

Read more here.


The Secret Life of Alice Martineau and Her Cystic Fibrosis

CF is a tragic disease that has taken the lives of too many.

Read about this true talent and amazing woman who battled CF.


Sit. Stay. Heal. Dogs Take on Parkinson’s Disease Diagnosis

These service dogs go beyond companionship.

Read more here.


Do you have a rare disease experience of your own? Share with us here.

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