Exciting Announcement from the Child Neurology Foundation

Announcement is via the Child Neurology Foundation, republished here with permission:


The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1 through 7. To recognize those who have made an outstanding contribution to families affected by infantile spasms, nominations are now being accepted for both the IS Hope Award and IS Heroes Award.

The IS Hope Award will honor a family who has not only demonstrated courage in the face of their child’s diagnosis of infantile spasms, but also has used their experience and shared their story to help generate awareness of IS and educate other parents facing this devastating form of seizures. Please click here to learn more and nominate a family. Nominations for the IS Hope Award are due by October 20, 2017.

The IS Heroes Award recognizes a health care professional and his or her institution for making a positive difference in the life of a child with infantile spasms. Nominations are accepted from parents and caregivers who wish to acknowledge a provider who has embodied the heroic spirit of compassionate and efficacious care during diagnosis or treatment of IS. Click here for more information and to make a nomination, Nominations for the IS Heroes Award are also due by October 20, 2017.

Recipients for the 2017 IS Hope and Hero Awards will be announced November 7.

To learn more, click here.

Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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