Editor’s Choice: Make This Week Your Week to Help Others!

TGIF Patient Worthians!

This week, we have two opportunities where you can spread some love. You can help a young boy with microcephaly and/or contribute to amyloidosis research.

We also have good news on the pulmonary fibrosis and cystic fibrosis front.

So sit back, relax and enjoy this week’s Editor’s Choice.


Why You Should Support This UK Fundraiser for Boy with Microcephaly

I don’t know about you, but I can’t take how adorable he is!

Check out his family’s GoFundMe here.

You Can Help Raise Money for Amyloidosis Research This October

The government and pharma aren’t the only ones who fund research. Advocacy groups pay a critical role too.

Find out how you can contribute here.

Researchers Target a Cure for Cystic Fibrosis, IPF, and Other Chronic Lung Diseases

Thank gosh for scientists looking into cures for rare diseases.

Read more on the latest pulmonary efforts here.

New Combination Treatment for CF on the Way

This combo treatment could mean great things for CF patients with little options: Coming February 2018.

Read more here.


Do you have a rare disease experience of your own? Share with us here.

Share this post

Share on facebook
Share on google
Share on twitter
Share on linkedin
Share on pinterest
Share on print
Share on email