Editor’s Choice: An Easy Way to Share Your Holiday Cheer

Happy Friday Before Thanksgiving!

As you prep your tummies for the feast next week, take a dive into some of our top stories this week.

There is an article honoring a young girl who succumbed to microcephaly, a young woman’s video on alagille syndrome, an inspiring story on adopted twins with pfeiffer syndrome and a way you can help send holiday cheer to a neuroblastoma patient.

So sit back and enjoy this week’s Editor’s Choice.
Girl Who Died of Microcephaly Was ‘Happiest Little Girl Ever’

The neglect of treatment for rare diseases too often results in the tragic ending of life too soon.

Read more about this cheerful little girl who suffered from microcephaly.

Kate’s Alagille Video Will Inspire You

In need of some motivation?

Check out Kate’s video here.

Twin Toddlers with Pfeiffer Syndrome Find Forever Home with Nurse

Adoption is beautiful.

Read about how these two twins with rare disease found a home through adoption.

Send Your Holiday Cheer to Cancer Patient

The year has gone by really fast, and if you haven’t had time to spread happiness in 2017, now is your chance.

Check out details here.


Do you have a rare disease experience of your own? Share with us here.
Jessica Gladwell

Jessica Gladwell

Jessica Gladwell is one of PW's consultants and patient editors. She has lived with late-stage, chronic Lyme and POTS since circa 2002. She has also served as a caregiver to close family members with late-stage, chronic Lyme. Before diagnosis, she served as a business consultant for a large corporation and PM for a small digital branding agency. Now, she is proactive in the rare and neurological disease community, spreading awareness and advising on matters of health and lifestyle when living with a chronic illness.

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