Hofstra is one college campus that gives students with disabilities the support and accommodations they need. They even have their own program called Student Access Services (SAS). The program is…
The HLN channel aired a documentary special regarding the rare and mysterious condition, fatal familial insomnia (FFI). FFI is a very rare genetic sleep disorder, with less than 40 families diagnosed…
Good news for patients with Mucopolysaccharidosis Type VII (MPS VII)! In mid-November, the FDA approved a new drug for treatment of this rare disorder. The drug can be used for…
A major first step for a viable treatment option! Achillion Pharmaceuticals last week reported preliminary proof-of-concept results from its ongoing Phase 2, study of a new treatment for C3 glomerulopathy…
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease, affects approximately 30,000 people in the United States. The National Organization for Rare Diseases estimates that 5,000 more people are diagnosed…
Julian Randle always wanted to play basketball. Now, the 11-year-old suffering with a rare disease will be joining a college team in Kansas. It was almost like a dream. The…
Love them, hate them, or love to hate them - celebrities are a big part of our culture. They sell us clothes, perfumes, lifestyles - and some we even elect…
As the United States Senate gears up to vote on whether to pass their version of the Republican-crafted tax reform legislation (the House of Representatives has already passed their version),…
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