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Nemaline Myopathy

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June 24: Celebrate “Mobility Day” with Variety
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June 24: Celebrate “Mobility Day” with Variety

  • Post author:Jessica Lynn
  • Post published:June 24, 2020
  • Post category:Nemaline Myopathy/Rare Disease

  If you're like me, your life has changed immensely over the past few months. COVID-19, a novel coronavirus with 8.39 million diagnoses worldwide, has kept us inside and changed…

Continue Reading June 24: Celebrate “Mobility Day” with Variety
Secret Sleigh Project Unites Santa with Sick Children
Source: Pixabay

Secret Sleigh Project Unites Santa with Sick Children

  • Post author:Andres Rovira
  • Post published:January 9, 2018
  • Post category:Nemaline Myopathy

Every Christmas, Ray Sherbourne takes on the role of old Saint Nick, and he even has the authentic white beard to prove it, as originally reported in The Landmark. After…

Continue Reading Secret Sleigh Project Unites Santa with Sick Children
Mutant Fish Sheds Light on Rare Disease
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Mutant Fish Sheds Light on Rare Disease

  • Post author:Andres Rovira
  • Post published:December 6, 2017
  • Post category:Nemaline Myopathy/Rare Disease

A mutant zebrafish that came into scientist's cross hairs over 20 years ago, has similar symptoms as patients who suffer from nemaline myopathy. This highly rare genetic muscle disorder is…

Continue Reading Mutant Fish Sheds Light on Rare Disease
Hofstra University Makes Disabled Lives Easier
Source: Pixabay

Hofstra University Makes Disabled Lives Easier

  • Post author:Andres Rovira
  • Post published:November 30, 2017
  • Post category:Nemaline Myopathy/Rare Disease

Hofstra is one college campus that gives students with disabilities the support and accommodations they need. They even have their own program called Student Access Services (SAS). The program is…

Continue Reading Hofstra University Makes Disabled Lives Easier

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