Treatment for Nonalcoholic Steatohepatitis Linked Cirrhosis Will Continue Into Phase 3 Trials
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Treatment for Nonalcoholic Steatohepatitis Linked Cirrhosis Will Continue Into Phase 3 Trials

According to a story from globenewswire.com, the drug development company Galectin Therapeutics, Inc., recently announced its plans to go forward with Phase 3 trials for GR-MD-02. The company is dedicated…

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An Algorithm That Uses Facial Features to Diagnose Sanfilippo Syndrome Type-B Has Been Developed
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An Algorithm That Uses Facial Features to Diagnose Sanfilippo Syndrome Type-B Has Been Developed

Collaboration between the FDNA, the Cure Sanfilippo Foundation, and the Jonah’s Just Begun Foundation has led to technology that successfully recognises the facial phenotype (observable characteristics) of patients with mucopolysaccharidosis…

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The Rising Price of Prescription Medicine Disproportionately Affects Rare Disease Patients
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The Rising Price of Prescription Medicine Disproportionately Affects Rare Disease Patients

It may not be surprising news to find that the United States now pays more for prescription drugs than any other high-income country. This was not always the case however. Read…

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An Experimental Drug for ALS Patients Will Become Available Through an Expanded Access Program
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An Experimental Drug for ALS Patients Will Become Available Through an Expanded Access Program

The pharmaceutical company Biohaven has announced that they will be using an expanded access program to make an experimental drug for amyotrophic lateral sclerosis (ALS) available to patients before F.D.A.…

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Canadian Patients Fear Discrimination with Challenge to Genetic Testing Law
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Canadian Patients Fear Discrimination with Challenge to Genetic Testing Law

In Canada, it is illegal to require a person to disclose results of genetic testing in any form of contract. The government of Quebec, however, recently issued a series of…

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