Walk the Walk During HAE Awareness Day
Thursday May 16th is HAE Day, when we observes the hopes, struggles, and resilience of the Hereditary Angioedema (HAE) patient community! What is HAE? “Angio” means pertaining to blood vessels, and…
My Battle, My Victory: an HAE Story
Loukisha shares her journey with hereditary angioedma (HAE). Living with a rare disease you'll experience highs and lows. Unfortunately the moments of struggle are unavoidable; all you can do is…
Potential New Oral Treatment for Hereditary Angioedema Scores Well in Safety and Efficacy
Hereditary angioedema (HAE) is a rare condition which causes severe swelling in various areas of the body. Takhzyro has been approved as a treatment for this disease. The drug was created…
Source: Pixabay.com
Hereditary Angioedema Discovery is First Step Toward Gene Therapy
Hereditary Angioedemia (HAE) results when the blood is missing the C1-inhibitor protein. It causes unpredictable and sudden attacks of swelling on various parts of the body. It can affect practically…
<a href="https://pixabay.com/users/Free-Photos/">Free-Photos</a> / Pixabay
Experimental Treatment Shuts Down Hereditary Angioedema Attacks Quickly in Trials
According to a story from Angioedema News, an investigational product from BioCryst Pharmaceuticals called BCX7353 was able to quickly subdue swelling attacks in hereditary angioedema in clinical trials. In addition,…
<a href="https://pixabay.com/users/stevepb/">stevepb</a> / Pixabay
New Treatment For Hereditary Angioedema Gets Approved in Canada
According to a story from pm360online.com, the global biotechnology company Shire plc recently announced its product Takhzyro (injectable lanadelumab) was approved by Health Canada after priority review. Takhzyro is indicated…
<a href="https://pixabay.com/users/qimono/">qimono</a> / Pixabay
The US FDA Has Approved Takhzyro for the Treatment of Hereditary Angioedema
The US Food and Drug Administration has approved a drug called TakhzyroTM (lanadelumab-flyo) for the treatment of hereditary angioedema. This approval was based on supporting evidence from several studies, including from…
<a href="https://pixabay.com/users/qimono/">qimono</a> / Pixabay
Investigational Gene Therapy for Hereditary Angioedema Gets Orphan Drug Designation
According to a story from globnewswire.com, the gene therapy company Adverum Biotechnologies recently announced that the US Food and Drug Administration (FDA) has granted them Orphan Drug designation for their…
<a href="https://pixabay.com/users/ugglemamma/">ugglemamma</a> / Pixabay
Rare Disease Treatments Cleared For Coverage on NHS Scotland
According to a story from Pharma Times, four new medications were recently approved for coverage on the Scottish NHS by the Scottish Medicines Consortium (SMC). Some of these drugs are…
<a href="https://pixabay.com/users/Pexels/">Pexels</a> / Pixabay
Experimental Treatment for Hereditary Angioedema Gets Fast Track Designation
According to a story from Benzinga, the pharmaceutical company BioCryst Pharmaceuticals, Inc., recently announced that its investigational product BCX7353 has been granted Fast Track Designation from the FDA for the…
Source: Loukisha
I’m Always Saying Sorry: Apologizing for My Hereditary Angioedema
As I’ve gotten older, I realize I’ve become more introspective, analyzing my relationships, emotions, spiritual well being, and mental health. While talking to others with rare diseases I’ve learned it…
<a href="https://pixabay.com/users/JuralMin/">JuralMin</a> / Pixabay
Everything You Need to Know About Three Types of Hereditary Angioedema
The information in this article is based on the HAE UK and the US Hereditary Angioedema Association websites. Hereditary angioedema (HAE) is a condition that affects about one in every…
<a href="https://pixabay.com/users/PublicDomainPictures/">PublicDomainPictures</a> / Pixabay
Scientists Have Identified Genes Involved in Hereditary Angioedema Acute Attacks
Researchers have carried out a study into the genetic mechanisms involved in hereditary angioedema acute attacks. They found that two genes, called uPAR and ADM, had a particularly strong influence.…
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The Rising Price of Prescription Medicine Disproportionately Affects Rare Disease Patients
It may not be surprising news to find that the United States now pays more for prescription drugs than any other high-income country. This was not always the case however. Read…
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Study Testing Self-Administration of Hereditary Angioedema Treatment Shows Positive Results
According to a story from Rare Disease Report, a recent study indicates that the self-administration of Berinert, a drug used to treat hereditary angioedema, is effective and safe for patients…
Source: Pixabay
Living with Hereditary Angiodema: My Life was Changed in an Instant, Part Two
Have you read part one of Loukisha's story? Check it out here! When I imagined life with my husband and children my plans didn’t include surgeries, walkers, canes, a wheelchair,…
Source: Loukisha Olive-McCoy
Living with Hereditary Angiodema: My Life was Changed in an Instant, Part One
From birth until my mid-thirties I was a very active person. I loved dancing West Coast Swing, doing yoga, and cooking large meals for my ‘Ohana. The word "'Ohana" describes…
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Treatment for Hereditary Angiodema Gets Marketing Approval From the EMA
According to a recent story from pm360online.com, the pharmaceutical company Shire announced that the marketing application for its drug product lanadelumab has gained approval from the European Medicines Agency (EMA).…
