Teresa’s Hereditary Angioedema “After Abdominal Attack Safety Diet”
Teresa Scruton is not a physican nor a nutritionist but she has been a person with hereditary angioedema (HAE) as well as a researcher for many years. Below she shares…
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Study Reveals a More Efficient Approach for Diagnosing Certain Cases of Hereditary Angioedema
According to a story from Angioedema News, a recent study discusses a genetic procedure called allelic discrimination as a method for diagnosing hereditary angioedema. The study concluded that this method…
Study Shows Efficacy of Treatment for Preventing Hereditary Angioedema Attacks
About HAE Hereditary angioedema (HAE) is a rare disease that is caused by the deficiency or reduction of a protein called C1-INH in the body. When this protein is not present,…
A Guide to Hereditary Angiodema (HAE) Abdominal Attacks
By: Teresa Scruton Hereditary Angiodema Abdominal Attacks There are 3 types of Hereditary Angiodema (HAE) abdominal attacks: Lower abdominal - swelling in wall of colon (large bowel), that causes the…
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Study Links Age of Onset and Year of Birth to Delayed Diagnosis for Hereditary Angioedema
According to a study recently published in Allergy and Asthma Proceedings, certain risk factors may increase an individual's likelihood of receiving a late diagnosis for hereditary angioedema. Hereditary angioedema is…
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UK’s NICE Recommends Coverage for Hereditary Angioedema Drug Takhzyro
According to a story from Angioedema News, the UK's National Institute for Health and Clinical Excellence (NICE) has officially recommended the drug lanadelumab (marketed as Takhzyro) for coverage under the…
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Trial Demonstrates The Effectiveness of Haegarda in Treating Hereditary Angioedema Attacks
According to a story from Angioedema News, a recent study demonstrated the effectiveness of the medication Haegarda in reducing the number of swelling attacks experienced by hereditary angioedema patients. Preventative…
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The Drug Firazyr is Safe for Older Hereditary Angioedema Patients, Study Finds
According to a story from Angioedema News, a recent study has found that the drug icatibant (marketed as Firazyr) can safely treat older patients with hereditary angioedema, a rare condition…
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Study Findings Encourage Genetic Testing for Hereditary Angioedema
According to a story from Angioedema News, the results of a recent study have led authors to conclude that genetic testing can be useful for the diagnosis of hereditary angioedema…
A Hereditary Angiodema Story: Is it Okay for Me To Laugh and Smile?
As my children are getting older they seem to create elaborate stories of why they didn’t clean up their room or complete any other task on their to-do list. I’ve…
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This Company is Making Plans to Develop a Gene Therapy for Hereditary Angioedema
According to a story from Angioedema News, the drug development company Regenxbio has announced that it is in the process of developing a new gene therapy treatment for hereditary angioedema,…
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Hereditary Angioedema Drug Shows Safety and Efficacy in Pediatric Patients, Study Shows
According to a story from Angioedema News, a recent clinical trial has demonstrated that the drug conestat alfa (marketed as Ruconest) was able to successfully treat 96 percent of acute…
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Study Findings Result in New Diagnostic Recommendations for Hereditary Angioedema in the ER
According to a story from Angioedema News, a team of researchers has used data from a recent study to provide up to date recommendations for diagnosing hereditary angioedema in the…
Walk the Walk During HAE Awareness Day
Thursday May 16th is HAE Day, when we observes the hopes, struggles, and resilience of the Hereditary Angioedema (HAE) patient community! What is HAE? “Angio” means pertaining to blood vessels, and…
My Battle, My Victory: an HAE Story
Loukisha shares her journey with hereditary angioedma (HAE). Living with a rare disease you'll experience highs and lows. Unfortunately the moments of struggle are unavoidable; all you can do is…
Potential New Oral Treatment for Hereditary Angioedema Scores Well in Safety and Efficacy
Hereditary angioedema (HAE) is a rare condition which causes severe swelling in various areas of the body. Takhzyro has been approved as a treatment for this disease. The drug was created…
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Hereditary Angioedema Discovery is First Step Toward Gene Therapy
Hereditary Angioedemia (HAE) results when the blood is missing the C1-inhibitor protein. It causes unpredictable and sudden attacks of swelling on various parts of the body. It can affect practically…
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Experimental Treatment Shuts Down Hereditary Angioedema Attacks Quickly in Trials
According to a story from Angioedema News, an investigational product from BioCryst Pharmaceuticals called BCX7353 was able to quickly subdue swelling attacks in hereditary angioedema in clinical trials. In addition,…
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New Treatment For Hereditary Angioedema Gets Approved in Canada
According to a story from pm360online.com, the global biotechnology company Shire plc recently announced its product Takhzyro (injectable lanadelumab) was approved by Health Canada after priority review. Takhzyro is indicated…
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The US FDA Has Approved Takhzyro for the Treatment of Hereditary Angioedema
The US Food and Drug Administration has approved a drug called TakhzyroTM (lanadelumab-flyo) for the treatment of hereditary angioedema. This approval was based on supporting evidence from several studies, including from…
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Investigational Gene Therapy for Hereditary Angioedema Gets Orphan Drug Designation
According to a story from globnewswire.com, the gene therapy company Adverum Biotechnologies recently announced that the US Food and Drug Administration (FDA) has granted them Orphan Drug designation for their…
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Rare Disease Treatments Cleared For Coverage on NHS Scotland
According to a story from Pharma Times, four new medications were recently approved for coverage on the Scottish NHS by the Scottish Medicines Consortium (SMC). Some of these drugs are…
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Experimental Treatment for Hereditary Angioedema Gets Fast Track Designation
According to a story from Benzinga, the pharmaceutical company BioCryst Pharmaceuticals, Inc., recently announced that its investigational product BCX7353 has been granted Fast Track Designation from the FDA for the…
Source: Loukisha
I’m Always Saying Sorry: Apologizing for My Hereditary Angioedema
As I’ve gotten older, I realize I’ve become more introspective, analyzing my relationships, emotions, spiritual well being, and mental health. While talking to others with rare diseases I’ve learned it…
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Everything You Need to Know About Three Types of Hereditary Angioedema
The information in this article is based on the HAE UK and the US Hereditary Angioedema Association websites. Hereditary angioedema (HAE) is a condition that affects about one in every…
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