August is Stevens-Johnson Syndrome (SJS) Awareness Month!
In honor of the SJS community, Friday August 31st has been designated an awareness day.
What is Stevens-Johnson Syndrome?
SJS is a rare, serious skin disorder that affects the mucous membranes and causes painful blistering and peeling. These blisters can even form inside of the body, making it difficult to eat, swallow, or even pee. It is usually a reaction to a particular medication or an infection. Stevens-Johnson syndrome is a medical emergency, and patients who develop the condition should be hospitalized. Click here to learn more about SJS.
Running and walking for awareness
So in honor of the SJS patient community, SJS Kids Support is organizing a run/walk for awareness.
On Friday, August 31st, you are encouraged to either take a walk around a park or neighborhood with your family/friends OR virtually run/walk by sharing the Stevie Johnson Seagull online!
Share Stevie Johnson Seagull or take a picture while walking, with the hashtag #SJSWalkForAwareness!
And make sure to follow the advocacy group on Facebook!