August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness
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August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness

The month of August is recognized as Stevens-Johnson Syndrome Awareness Month. The goal of this event is to elevate awareness about Stevens-Johnson syndrome among the general public and in the…

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Patients in Mayo Clinic’s RIGHT Study Carried One or More Genetic Variants That May Affect Their Response to Medication

  Pharmacogenomics plays an important role in predicting whether patients will benefit from certain medications or if the medication will cause serious side effects. The process involves the way in…

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Sisters with Multiple Sclerosis Share Their Scary Stevens-Johnson Syndrome Story In an Effort to Spread Awareness

An Unexpected Emergency Kristin Hardy and her sister Margaret are no strangers to rare disease. Kristin has primary progressive multiple sclerosis (MS) and Margaret has relapsing-remitting multiple sclerosis. Margaret also…

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Kids With Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis Experience Complications and Get Inconsistent Treatment, Study Says
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Kids With Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis Experience Complications and Get Inconsistent Treatment, Study Says

According to a story from ScienceDaily, a recent analysis has been conducted in order to investigate patient outcomes for children with the rare skin condition Stevens-Johnson syndrome, as well its…

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Courage: It’s What’s On and Off the Links for Rare Stevens-Johnson Syndrome PGA Player
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Courage: It’s What’s On and Off the Links for Rare Stevens-Johnson Syndrome PGA Player

Stevens-Johnson syndrome is a rare, serious skin disorder that affects the mucous membranes and causes painful blistering and peeling. These blisters can even form inside of the body, making it…

Continue Reading Courage: It’s What’s On and Off the Links for Rare Stevens-Johnson Syndrome PGA Player