Editor’s Choice: Stevens-Johnson Syndrome Awareness Month

Happy Friday! Did you know that August is Stevens-Johnson Syndrome Awareness Month? It's a type of severe skin reaction that often involves admission to a burn unit for treatment. We've…

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August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness
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August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness

The month of August is recognized as Stevens-Johnson Syndrome Awareness Month. The goal of this event is to elevate awareness about Stevens-Johnson syndrome among the general public and in the…

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Patients in Mayo Clinic’s RIGHT Study Carried One or More Genetic Variants That May Affect Their Response to Medication

  Pharmacogenomics plays an important role in predicting whether patients will benefit from certain medications or if the medication will cause serious side effects. The process involves the way in…

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Robotic Exoskeletons May Be the Future of Therapy for Spinal Cord Injuries
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Robotic Exoskeletons May Be the Future of Therapy for Spinal Cord Injuries

According to a publication from The Inside Press, researchers at the Burke Neurological Institute in White Plains, New York recently conducted a clinical trial focused on the potential use of…

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Sisters with Multiple Sclerosis Share Their Scary Stevens-Johnson Syndrome Story In an Effort to Spread Awareness

An Unexpected Emergency Kristin Hardy and her sister Margaret are no strangers to rare disease. Kristin has primary progressive multiple sclerosis (MS) and Margaret has relapsing-remitting multiple sclerosis. Margaret also…

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International Meeting for Patients and Researchers Held for Stevens-Johnson Syndrome

Stevens-Johnson Syndrome Stevens-Johnson Syndrome (SJS), otherwise known as toxic epidermal necrolysis, is a rare disease caused by allergic reactions to common drugs or a reaction to an infection. Some of…

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Kids With Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis Experience Complications and Get Inconsistent Treatment, Study Says
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Kids With Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis Experience Complications and Get Inconsistent Treatment, Study Says

According to a story from ScienceDaily, a recent analysis has been conducted in order to investigate patient outcomes for children with the rare skin condition Stevens-Johnson syndrome, as well its…

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Courage: It’s What’s On and Off the Links for Rare Stevens-Johnson Syndrome PGA Player
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Courage: It’s What’s On and Off the Links for Rare Stevens-Johnson Syndrome PGA Player

Stevens-Johnson syndrome is a rare, serious skin disorder that affects the mucous membranes and causes painful blistering and peeling. These blisters can even form inside of the body, making it…

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Stevens-Johnson Syndrome Rashes Consume Girl’s Skin. Here’s How You Can Help.
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Stevens-Johnson Syndrome Rashes Consume Girl’s Skin. Here’s How You Can Help.

Phoenix Richey was living a happy and healthy life until things escalated toward the unexpected. During a tumultuous 24 hour period, a strange allergic reaction spread along 65 percent of…

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