Editor’s Choice: So Many Rare Patient Stories, So Little Time

Hey…Is That Autumn on the Horizon?

Well…kind of but sort of no, it is still pretty hot where we are; but it is only a matter of time before we start whipping out a bunch of pumpkin spice flavored stuff and so on. Anyway, we have got a nice helping of patient centered stories this week. You might laugh, you might cry…or maybe neither. But when it comes down to it, the most important point is that the stories of these rare disease patients are spread far and wide. So read, like, and share. Here is Editor’s Choice.

 

How Automated Text Messages Could Prevent Colon Cancer

 

 

 

 

How can medical professionals harness smartphones to improve outcomes? Here’s one example.

 

At Age 6, A Boy Finally Discovers His Disease: He’s The First To Be Diagnosed With It

 

 

 

 

 

 

After years of searching for a diagnosis, one family finds a very rare answer.

 

A Tale of Two Sisters With Cystic Fibrosis Highlights the Barriers to Treatment Access That Still Remain

 

 

 

 

 

 

While CF outcomes are improving, many barriers to treatment remain.

 

Korean Company Predicts Your Risk of Developing Certain Genetic Conditions by Sequencing Your Genome

 

 

 

Early diagnosis can be key to receiving treatment- and this Korean company may help people find asnwers.


Do you have a rare disease experience of your own? Share with us here.

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