Happy Thursday!
This week we’re highlighting four patient stories: a woman managing her HAE symptoms, a singer with a scary diagnosis, a Bechet patient building support networks, and a CIDP adventurer.
Sit back and enjoy this week’s editor’s choice.
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Teresa’s Hereditary Angiodema “After Abdominal Attack Safety Diet”
Are you trying to manage HAE symptoms? This is how one patient has changed her diet to help.
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“I Could Die:” Vocalist from The Script Talks About Wilson’s Disease Diagnosis
Rare disease can affect anybody– here’s how one singer speaks out about his frightening diagnosis.
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Battling Behcet’s and Building a Community
When you have a rare disease like Bechet’s, support networks are crucial.
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A Man with CIDP Slid 400 Feet Down the New River Gorge’s High-Line in a Wheelchair.
A man with CIDP took on a “yes you can” attitude, and loved it.
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