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Daily Archives: December 31, 2019

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AI To Find Rare Neurological Cures: HealX and Boehringer Ingelheim Team Up

AI To Find Rare Neurological Cures: HealX and Boehringer Ingelheim Team Up

  • Post author:Sunniva Bean
  • Post published:December 31, 2019
  • Post category:Rare Disease

As originally reported in the Cambridge Independent; rare disease treatment is full of potential. In part, because there aren’t many. This is not for lack of ability, but for lack…

Continue Reading AI To Find Rare Neurological Cures: HealX and Boehringer Ingelheim Team Up
Why Can’t Hypoparathyroidism Patients Access The Drug Natpar?

Why Can’t Hypoparathyroidism Patients Access The Drug Natpar?

  • Post author:Sunniva Bean
  • Post published:December 31, 2019
  • Post category:Rare Disease

As originally reported in Medscape; many rare disease patients know the frustration of not having any drugs or treatments available for their disease. 95% of rare disease patients have no…

Continue Reading Why Can’t Hypoparathyroidism Patients Access The Drug Natpar?
Canadian Boy’s Rare Disease Makes Him ‘Itch Like Crazy’

Canadian Boy’s Rare Disease Makes Him ‘Itch Like Crazy’

  • Post author:Jean Martell
  • Post published:December 31, 2019
  • Post category:Progressive Familial Intrahepatic Cholestasis

The Calgary Herald published a story about 2 and 1/2 year old Armando Perez's rare disease Progressive Familial Intrahepatic Cholestasis (PFIC), with has left him unusually itchy. It's so important…

Continue Reading Canadian Boy’s Rare Disease Makes Him ‘Itch Like Crazy’
How to Qualify for Disability Benefits 
source: pixabay.com

How to Qualify for Disability Benefits 

  • Post author:Patient Worthy Contributor
  • Post published:December 31, 2019
  • Post category:Rare Disease

If you are unable to work because of a medical condition, you may qualify for disability benefits from the Social Security Administration (SSA). The SSA oversees two different disability programs, Social Security Disability…

Continue Reading How to Qualify for Disability Benefits 

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