Editor’s Choice: Painting, Lobbying, and Grocery Shopping

Hi everyone!

Times are hard right now, but we hope you and your loved ones are staying safe right now. Today, we’re bringing you three stories: first, we have some practical advice for weathering the COVID-19 era. Next, we have a podcast episode with a youth advocate. Last but not least, we have a story about a man who pursued a passion, even after a new diagnosis made it difficult.


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A Guide to Grocery Shopping During COVID-19


If you’re anything like us, going to the grocery store is an anxiety-producing ordeal right now. Here are some ways to make it easier.[one_half]


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oung adults changing rare disease legislation, ft. Dan Pezatta from YARR

Dan Pazetta is a youth advocate who lobbies for people with rare diseases. During rare disease week, he sat down with us on our podcast to share hist story.


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When CIDP Paralyzed his Hands, He Painted With His Mouth


Alex’s CIDP diagnosis was a hard life change. However, he didn’t stop painting– he just learned to do it differently.

Do you have a rare disease experience of your own? Share with us here.

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