Editor’s Choice: Stevens-Johnson Syndrome Awareness Month

Happy Friday!

Did you know that August is Stevens-Johnson Syndrome Awareness Month? It’s a type of severe skin reaction that often involves admission to a burn unit for treatment. We’ve got some ideas on how you can help spread awareness below. We also have information about a new orphan drug designation that may be a possible treatment option for pancreatic cancer. And finally, you won’t want to miss the documentary, “My Disease, Our Revolution,” which chronicles one patient’s push to get a common household sweetener into a clinical trial for potentially improving Parkinson’s symptoms. We hope you enjoy your weekend!


What You Can Do to Help During Stevens-Johnson Syndrome Awareness Month

The goal of this event is to elevate awareness about Stevens-Johnson syndrome among the general public and in the broader medical community.


A Possible Treatment for Pancreatic Cancer Just Earned Orphan Drug Designation

SM-88, also known as racemetyrosine, was awarded the designation from the US Food and Drug Administration (FDA) as a treatment for pancreatic cancer.


This Sweetener Was Helping His Parkinson’s, So He Decided to Find Out More

The documentary “My Disease Our Revolution” came out on July 29th, showing how one patient’s idea made it to trials when the internet responded.


Do you have a rare disease experience of your own? Share with us here.

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