Editor’s Choice: How to Help Out on Duchenne Awareness Day

Happy Friday!

Monday, Sept. 7 is Duchenne Muscular Dystrophy Awareness Day. DMD is characterized by the inability to make the protein dystrophin in muscles and can result in heart and respiratory weakness and quadriplegia. Looking for ways to help out? Our partner organization, Cure Duchenne, has some ideas on how you can get started. This week, we have some details on a possible link between myasthenia gravis and COVID-19 that was described by doctors in Italy. We also have some encouraging advice on how to live with grief as a cancer survivor. And finally, a high school senior in California is making special dolls for children with rare diseases. We hope you have a wonderful weekend!

 

A Possible Connection Between COVID-19 and Myasthenia Gravis

Doctors in Italy have found a possible link after three patients were diagnosed with the neurological condition.

 

Living With Grief as a Cancer Survivor

Dealing with grief is different for everybody. Unfortunately, living with a rare disease can bring sadness and grief into one’s life.

 

Special Dolls for Children With Rare Diseases

A high school senior talks about her new-found passion to create dolls for children who had cranial and facial surgeries.

 


Do you have a rare disease experience of your own? Share with us here.

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