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Daily Archives: August 1, 2022

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Study of the Week: NAFLD Rates Are Rising Rapidly Around the World
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Study of the Week: NAFLD Rates Are Rising Rapidly Around the World

  • Post author:James Moore
  • Post published:August 1, 2022
  • Post category:Nonalcoholic fatty liver disease

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we think is of particular interest…

Continue Reading Study of the Week: NAFLD Rates Are Rising Rapidly Around the World
Sensitivity to Certain Sounds May Mean You Have Misophonia

Sensitivity to Certain Sounds May Mean You Have Misophonia

  • Post author:Alyssa Stevens
  • Post published:August 1, 2022
  • Post category:Misophonia

  A recent article is bringing light to the condition known as misophonia, a disorder which causes people to have severe responses to certain sounds. Misophonia Misophonia, which literally translates…

Continue Reading Sensitivity to Certain Sounds May Mean You Have Misophonia
Positive Data Available: Litifilimab for Cutaneous Lupus
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Positive Data Available: Litifilimab for Cutaneous Lupus

  • Post author:Jessica Lynn
  • Post published:August 1, 2022
  • Post category:Lupus

2157 words (source) vs. 423 words (mine) - 5% match In the Phase 2 LILAC clinical trial, researchers sought to evaluate the safety, efficacy, and tolerability of litifilimab (BIIB059) for…

Continue Reading Positive Data Available: Litifilimab for Cutaneous Lupus
Priority Review and Accepted NDA: Tofersen for SOD1 ALS
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Priority Review and Accepted NDA: Tofersen for SOD1 ALS

  • Post author:Jessica Lynn
  • Post published:August 1, 2022
  • Post category:Acute lymphocytic leukemia/Amyotrophic Lateral Sclerosis/meningitis

  At the end of July 2022, biotechnology company Biogen Inc. shared via news release some exciting updates in regards to its therapy tofersen, an investigational treatment for patients with…

Continue Reading Priority Review and Accepted NDA: Tofersen for SOD1 ALS
Alex’s Story: An Odyssey From Diagnosis to Treatment
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Alex’s Story: An Odyssey From Diagnosis to Treatment

  • Post author:James Moore
  • Post published:August 1, 2022
  • Post category:IRF2BPL-related disorder

When Caroline Cheung-Yiu's son Alex started to walk around age two, it was clear that he was struggling with his balance and coordination; but instead of improving, his issues started…

Continue Reading Alex’s Story: An Odyssey From Diagnosis to Treatment
Patient Story: Woman with Severe Aplastic Anemia Successfully Treated
source: pixabay.com

Patient Story: Woman with Severe Aplastic Anemia Successfully Treated

  • Post author:Alyssa Stevens
  • Post published:August 1, 2022
  • Post category:Aplastic anemia

  Recently a woman was admitted to Odisha hospital where she was successfully treated for her rare blood disorder aplastic anemia. Aplastic Anemia Aplastic anemia is a rare, but serious,…

Continue Reading Patient Story: Woman with Severe Aplastic Anemia Successfully Treated

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Why Your Voice in Research Matters: Groundbreaking Studies are Changing What's Possible


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Rethinking What It Means to Live With Acromegaly


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The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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