September 15th is World Lymphoma Awareness Day: Spreading Blood Cancer Awareness
source: pixabay.com

September 15th is World Lymphoma Awareness Day: Spreading Blood Cancer Awareness

September 15th, 2020 is recognized as World Lymphoma Awareness Day. This day is dedicated to spreading awareness about lymphoma and falls in the context of Blood Cancer Awareness Month, which…

Continue Reading September 15th is World Lymphoma Awareness Day: Spreading Blood Cancer Awareness
Severe Aplastic Anemia Patients’ Response Rates Improved with a New Triple Therapy
source: pixabay.com

Severe Aplastic Anemia Patients’ Response Rates Improved with a New Triple Therapy

  Phase III clinical trial results of the triple therapy combination for the treatment of severe aplastic anemia (SAA) were set forth in a recent News Medical Life Sciences article.…

Continue Reading Severe Aplastic Anemia Patients’ Response Rates Improved with a New Triple Therapy
Researchers Find Gut Bacteria that Can Change Type A Blood to Type O
source: pixabay.com

Researchers Find Gut Bacteria that Can Change Type A Blood to Type O

Blood Donations For many people living with a rare disease such as Beta thalassemia, Hemophilia, Aplastic Anemia, Myelodysplastic syndromes, Acute Promyelocytic leukemia, and others, blood transfusions are not uncommon. For…

Continue Reading Researchers Find Gut Bacteria that Can Change Type A Blood to Type O
Norah Needs You: Help This Young Girl Find a Bone Marrow Donor 
Source: Pixabay

Norah Needs You: Help This Young Girl Find a Bone Marrow Donor 

At four years old, Norah Gratz-Lazarus of California is a sweet, bubbly girl, full of spirit. She's a big sister, and loves jokes, ice cream, and chocolate chip cookies. However, Norah…

Continue Reading Norah Needs You: Help This Young Girl Find a Bone Marrow Donor 
Finally Severe Aplastic Anemia Patients will Have Access to Eltrombopag
Free-Photos / Pixabay

Finally Severe Aplastic Anemia Patients will Have Access to Eltrombopag

Eltrombopag (Promacta) has now been approved for all individuals in the US with severe aplastic anemia. The drug will be accessible to both pediatric and adult patients. This is huge news.…

Continue Reading Finally Severe Aplastic Anemia Patients will Have Access to Eltrombopag
Aplastic Anemia and MDS International Foundation: 2018 Scientific Symposium
Hans / Pixabay

Aplastic Anemia and MDS International Foundation: 2018 Scientific Symposium

At the 2018 Aplastic Anemia and MDS International Foundation’s (AAMDSIF) International Bone Marrow Failure Disease Scientific Symposium of March 2018, Dr. David Margolis from the Medical College of Wisconsin, and…

Continue Reading Aplastic Anemia and MDS International Foundation: 2018 Scientific Symposium

Welcome AAMDS, a New Patient Worthy Advocacy Partner!

We're happy to introduce a new partner to Patient Worthy's mission of advocating for rare disease patients! The Aplastic Anemia and MDS International Foundation (AAMDS) supports, connects and educates patients, caregivers…

Continue Reading Welcome AAMDS, a New Patient Worthy Advocacy Partner!
FDA Gives Priority Review to Promising Treatment for Severe Aplastic Anemia
source: pixabay.com

FDA Gives Priority Review to Promising Treatment for Severe Aplastic Anemia

According to a story from pm360online.com, the U.S. Food and Drug Administration (FDA), has given Priority Review status to eltrombopag (marketed as Promacta) after impressive clinical trial results. Eltrombopag was…

Continue Reading FDA Gives Priority Review to Promising Treatment for Severe Aplastic Anemia
Only One Person Who Can Save The 12-Year-Old Girl With Aplastic Anemia. Is It You?
Source: Pixabay

Only One Person Who Can Save The 12-Year-Old Girl With Aplastic Anemia. Is It You?

Alex Pasichnyk is a 12-year-old girl from Canada, who enjoys playing piano and swimming. Last June, her life was suddenly interrupted by a rare disease. Alex has to leave her…

Continue Reading Only One Person Who Can Save The 12-Year-Old Girl With Aplastic Anemia. Is It You?
Donate Blood in the Name of Bleeding Disorders Awareness Month
https://pixabay.com/en/blood-donation-give-732298/

Donate Blood in the Name of Bleeding Disorders Awareness Month

Let's talk blood donation. I recently spoke with a man from a small African country who suffers from hemophilia. He told me that when he was growing up, there was no…

Continue Reading Donate Blood in the Name of Bleeding Disorders Awareness Month
Close Menu