Norah Needs You: Help This Young Girl Find a Bone Marrow Donor
At four years old, Norah Gratz-Lazarus of California is a sweet, bubbly girl, full of spirit. She's a big sister, and loves jokes, ice cream, and chocolate chip cookies. However, Norah…
Finally Severe Aplastic Anemia Patients will Have Access to Eltrombopag
Eltrombopag (Promacta) has now been approved for all individuals in the US with severe aplastic anemia. The drug will be accessible to both pediatric and adult patients. This is huge news.…
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Aplastic Anemia and MDS International Foundation: 2018 Scientific Symposium
At the 2018 Aplastic Anemia and MDS International Foundation’s (AAMDSIF) International Bone Marrow Failure Disease Scientific Symposium of March 2018, Dr. David Margolis from the Medical College of Wisconsin, and…
Welcome AAMDS, a New Patient Worthy Advocacy Partner!
We're happy to introduce a new partner to Patient Worthy's mission of advocating for rare disease patients! The Aplastic Anemia and MDS International Foundation (AAMDS) supports, connects and educates patients, caregivers…
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FDA Gives Priority Review to Promising Treatment for Severe Aplastic Anemia
According to a story from pm360online.com, the U.S. Food and Drug Administration (FDA), has given Priority Review status to eltrombopag (marketed as Promacta) after impressive clinical trial results. Eltrombopag was…
Child With Severe Aplastic Anemia Needs Bone Marrow Transplant
Ellie White is everything you would want in an 18-month-old daughter, fun, playful, and full of life-- yet not too long ago her family discovered she had a rare disease,…
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Girl With Rare Blood Disease Battles On
5-year-old Gia Danninger was diagnosed with aplastic anemia last year. Ever since, it's been a constant battle for her life, but Gia fights with courage. This rare blood disorder causes…
Meet the Winner the Aplastic Anemia Lottery
All the odds were stacked against Jimmy Roberson, a man in Birmingham, Alabama. It all began in 2013. Jimmy was on a trip to the lake, but the relaxing day…
Only One Person Who Can Save The 12-Year-Old Girl With Aplastic Anemia. Is It You?
Alex Pasichnyk is a 12-year-old girl from Canada, who enjoys playing piano and swimming. Last June, her life was suddenly interrupted by a rare disease. Alex has to leave her…
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Cracking the Aplastic Anemia Life Code Just Got a Little Easier
There’s one person I learned about today who has an admirable life mantra. The young man is D’Marco Jackson, and he lived with aplastic anemia (AA), but he succumbed to…
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Their Youngest Sister Has Aplastic Anemia and These Girls Are Fighting Back
Siblings! We all have our opinions. Not everyone has that close unified bond with his or her brothers and/or sisters, but one thing is certain: If the connection is there,…
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Buddy, Can You Spare a Pint (of Blood) for Aplastic Anemia?
I donate blood whenever I can. Is it a fun-time activity? Nope. Let's face it: Nobody likes to get stuck with a needle. So why do I bother? I donate because other…
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Donate Blood in the Name of Bleeding Disorders Awareness Month
Let's talk blood donation. I recently spoke with a man from a small African country who suffers from hemophilia. He told me that when he was growing up, there was no…
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When Your Disease is Bad Enough and Side Effects Make it Worse
His gums were bleeding. Can you imagine? Think about it—waking up one morning and your gums... are bleeding. I don't know about you, but I'd freak out. This stuff doesn't…
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The AA Donor Taboo We Should Break
It’s tough to be productive in our daily lives when anxiety and worry are dominating our thoughts, and if you or someone you love lives with aplastic anemia (AA), then…
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Aplastic Anemia: An Outstanding Story That Will Inspire All
Man, I’m not so sure that I believe in angels, but my heart is overjoyed whenever I hear about strangers who’ve donated ANYTHING to help ANYBODY! With aplastic anemia—depending on…
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Here’s Why You Should Start a Blog If You Haven’t Yet
You know what's awesome? Blogs. They're a great medium for people to: get out their thoughts in writing educate the public teach something about which they're passionate rant about politics…
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If You Have Aplastic Anemia, You Should Know Why This Girl is So Desperate
Her name is Katelynn. Junior in high school. Third-year starter for her volleyball team, and a good one at that. She has it made... except for one thing. She suffers…
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Everything’s Coming Up Roses for Lilly, She Beat Aplastic Anemia
A little more than a year ago, a little girl in Michigan was critically ill. Doctors were hopeful they could help her, but there were no guarantees. Lilly Vanden Bosch,…
An Aplastic Anemia Feel-Good Story to Restore Your Spirits
While Trey Finomore, a preteen from Colorado, was visiting family in Ohio, his parents noticed he was collecting a lot of bruises. Most of the time, it's expected kids will…
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Aplastic Anemia Basics – What Everyone Needs to Know
In Himanshu Sharma’s article posted on Onlymyhealth.com back in 2014, it appears that the basics are there. But I’d like to offer my own take since I happen to have…
Dreams are coming true for this little girl living with aplastic anemia! Source: www.pixabay.com
Aplastic Anemia: This Fabulous Fairy Princess Will Warm Your Heart
I feel like shouting from the rooftop after reading about this 7-year-old girl named Yasmin. After a long hospitalization that spanned several months, she finally got released because her body…
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What Do You Think, is This an Aplastic Anemia Miracle?
Miracles never cease to amaze me. And quite frankly, it’s been a long time since I’ve been convinced that one actually has happened—although in theory, I welcome miracles every day!…
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Check Out These Interesting Facts on Aplastic Anemia and Expand Your Mind
If you are trying to dive into aplastic anemia, here are some interesting facts from the Seattle Children’s Hospital that you should definitely check out. First, for anyone who’s been…
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Could Aplastic Anemia Healthcare Crisis Strike in the States?
Amidst the hype leading up to the first head-to-head American Presidential debate with Trump vs. Clinton, the topic of Venezuela’s drug shortage of aplastic anemia drugs wasn't mentioned. But having…
