SUNCT – A Rare Headache Disease
Imagine feeling like you have a sweat bee stuck in your eye socket that randomly stings you. The sting hurts for seconds. My left eye is red and tearing. My…
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SUNCT – A Rare Headache Disease
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Science Simplified: How is Animal Behavior Used in Research? Part One
Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science…
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Science Simplified: How is Animal Behavior Used in Research? Part One
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Fundraiser Held for Boy with PCH6
In his early stages of life, Austin (A.J.) Rose was diagnosed with an ultra-rare disease called pontocerebellar hypoplasia type 6 (PCH6). Now, at three years old, A.J. is a…
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Fundraiser Held for Boy with PCH6
Jordan and Dr. Byrne. Photo courtesy of David Ogman
Saving Jordan Ogman: How One Family is Working Towards a TECPR2 Cure (Pt. 1)
There seems to be no limits when it comes to what a parent will do for their child. And when it came down to it, David and Stacey Ogman knew…
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Saving Jordan Ogman: How One Family is Working Towards a TECPR2 Cure (Pt. 1)
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Dovitinib for Osteosarcoma Earns Rare Pediatric Disease Designation
In late September 2022, biotech company Oncoheroes Biosciences, Inc. ("Oncoheroes") shared via news release that its product dovitinib, which the company has an exclusive pediatric licensing agreement for from…
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Dovitinib for Osteosarcoma Earns Rare Pediatric Disease Designation
