AKF Launches Unknown Causes of Kidney Disease Coalition


Previously, the American Kidney Fund launched the Unknown Causes of Kidney Disease (UCKD) Project. Through the project, the AKF is working to better understand how undiagnosed or misdiagnosed causes of kidney disease affect patient outcomes, treatment, and overall care. At the end of September 2022, Healio reported that that the AKF has formed the Unknown Causes of Kidney Disease Coalition.

Comprised of fifteen individuals and organizations, which include people with kidney disease, caregivers, patient organizations, and experts or physicians in kidney care, the UCKD Coalition is designed to support and advance policies and action around kidney disease. The Coalition aims to educate the general public (and policymakers) about issues facing the kidney disease community. Additionally, the Coalition will write and send letters to Congress, recommend strategies to address issues facing this community, and participate in other advocacy-related endeavors.

Altogether, the goal is to raise awareness of kidney disease – and especially rare kidney diseases – to provide patients and families with the best support and resources possible.

For a full list of the people and organizations making up the UCKD Coalition, head here.

Different Forms of Kidney Disease

There are various kidney diseases and subtypes, many of which are considered to be rare. The kidneys are paired organs which help filter waste from your blood. Diabetes and high blood pressure can increase the risk of developing certain kidney diseases.

Below, you can find a list of different forms of either kidney disease or diseases which significantly affect the kidneys or renal function to further your research. This is not a comprehensive list of kidney diseases. However, it can provide a jumping off point. Some examples include:


Jessica Lynn

Jessica Lynn

Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.

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