November 4, 2022 – Patient Worthy

Photo courtesy of Geraldine Bliss

Raising Phelan-McDermid Syndrome Awareness (And How YOU Can Get Involved at the EL-PFDD Meeting!): An Interview with Geraldine Bliss (Pt. 1)

Post author:Jessica Lynn
Post published:November 4, 2022
Post category:Phelan-McDermid syndrome

On November 8th, 2022, CureSHANK is sponsoring an Externally-Led Patient-Focused Drug Development (EL-PFDD) Meeting for Phelan-McDermid Syndrome (PMS). Co-planned by the Phelan-McDermid Syndrome Foundation, this virtual EL-PFDD meeting will: [give]…

valelopardo / Pixabay

November is Mouth Cancer Action Month

Post author:Rose Duesterwald
Post published:November 4, 2022
Post category:Head and neck cancer Mouth Cancer Oral cancer

Join thousands of people worldwide in raising awareness of mouth cancer during the month of November. It is the largest campaign in the UK in support of education and awareness…

source: pixabay.com

Spotswood PD Holds CDH Awareness Walk

Post author:Jessica Lynn
Post published:November 4, 2022
Post category:Congenital Diaphragmatic Hernia

Gonzolo and Jennifer Garcia were so excited when they learned that they were pregnant with their son, Asher. But during the 20-week ultrasound, they found out that Asher would be…

Source: Pixabay.com

Boy with Craniosynostosis Faces Third Surgery

Post author:Jessica Lynn
Post published:November 4, 2022
Post category:Craniosynostosis

Branson Figueroa is four years old – and he’s tough. He has to be; after being born with craniosynostosis, Branson has had to undergo skull reconstruction surgeries twice already. According…

source: shutterstock

Rare Classroom: Alpha-Mannosidosis

Post author:James Moore
Post published:November 4, 2022
Post category:Alpha-Mannosidosis Alpha-mannosidosis- type 2

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most…

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Raising Phelan-McDermid Syndrome Awareness (And How YOU Can Get Involved at the EL-PFDD Meeting!): An Interview with Geraldine Bliss (Pt. 1)

November is Mouth Cancer Action Month

Spotswood PD Holds CDH Awareness Walk

Boy with Craniosynostosis Faces Third Surgery

Rare Classroom: Alpha-Mannosidosis

Metastatic Breast Cancer: Navigating Grief

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

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