A Call to Action on World Hemophilia Day 

Caring is Sharing and Getting Involved. On April 17th Landmarks all over the world will be asked to ‘Light It Red’ in honor of Hemophilia Day.

The theme of this year’s event is “Access for All: Prevention of bleeds as the global standard of care.”

You can take part locally and around the world in increasing awareness to control and prevent bleeds. The 2023 theme draws momentum from last year’s World Hemophilia Day. You will find options available to you so that you can easily become involved.

Cesar Garrido, World Federation of Hemophilia (WFH) President, speaks with sincerity and strong emotion when he sees a child with a bleeding disorder able to participate in playtime with friends, as well as when he observes the child being able to attend school and generally enjoying a better quality of life. That child has access to proper treatment.

The 2023 Call to Action

The goal this year is to advocate with local governments for better access to treatment. Emphasis should highlight prevention and control of bleeds for people with bleeding disorders. This translates to home-based treatment and prophylactic treatments.

Campaign Materials

A range of logos, posters, and digital materials are available for you online. They can be modified to fit your local campaign needs. You will also be able to download social media graphics and access the WFH toolkit.

 You Are Invited to Share Your Story

You may wish to share your story whether it is about someone you know who has been affected by bleeding or your own story. Be sure to read stories submitted by other people in the global community.

About the WFH

The World Federation of Hemophilia (NFH) works in partnership with governments, healthcare providers, and national member organizations from 147 countries. The WFH provides these organizations with the tools and knowledge they require to identify, support, and treat those with bleeding disorders. At the same time, the WFH promotes global advocacy to achieve common goals.

National Membership Organizations

 The WFH requires a patient association seeking to be accredited as a national member organization to represent the highest and best interests of the majority of national members.

Additional information about World Hemophilia Day can be found here.

 

Rose Duesterwald

Rose Duesterwald

Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

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