October is Spina Bifida Awareness Month


You are invited to join hundreds of thousands of people touched by spina bifida, the most common congenital birth defect causing disability. There is no cure.

This is a very special month! October 2023 is the 50th Anniversary of the Spina Bifida Association. Another reason to celebrate.

The Spina Bifida Association (SBA) is dedicated to building a better future for those affected by SBA.

For more information visit the 2023 Spina Bifida Awareness Month webpage.

We can all help. Your favorite “go-to” is a convenient way to begin. Follow SBA on Facebook, Instagram, and Twitter (X). Please use # SBAM2023 and #SpinaBifidaAwarenessMonth in each October post.

According to the U.S. CDC, each year approximately 1,400 babies are born with spina bifida. The exact cause is unknown.

The Spina Bifida Association advocates for disability rights, SBA program funding, and affordable health care.

All those touched by spina bifida are encouraged to share their stories. This is another way of spreading awareness. Let us know what spina bifida means to you, your family, and your friends. Send your thoughts, stories, and hopes to the Association. Anyone may submit a story. There is no need to be affiliated with a group or with the SBA. It is your interest and willingness to participate that qualifies you.

The Association offers online and in-person education programs featuring experts in the medical profession, parents, and also adults with spina bifida.

You may have helpful information about SBA and its programs that you would like to share with a teacher, legislature, neighbor, or anyone in a position to network.

The medical profession has made tremendous progress. It does not happen overnight. It happens with caring individuals who want to help others.



Rose Duesterwald

Rose Duesterwald

Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

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