As originally reported in Smart Parenting; many families with rare diseases are struggling to keep up with their healthcare regime as new restrictions block families from accessing doctors and normal…
By Natalie Homan from In The Cloud Copy Spina bifida is a condition that appears when a developing baby’s neural tube doesn’t close completely. The most severe form of spina…
According to a story from Chronicle Live, 36 year old Donna Campbell was found unresponsive in her hospital bed on June 22nd, 2019. She was officially pronounced dead the following…
By Rachel Whetstone from In The Cloud Copy When Helisabed Romano was pregnant with her daughter, she got some bad news. The the developing baby had spina bifida, a defect…
Each year just under 1,500 infants are born with spina bifida, a name given to a cluster of malformations that affect the neural tube. Of those 1,500, only 43%…
According to a story from Yahoo! News, Dorothy Dunnington is beginning to wonder if she will ever fully understand the circumstances surrounding the death of her sister Chrissy, who was…
Growing up "Normal" Growing up, Steph Derham always thought she was normal. She says she has her parents to thank for that. Steph is incredibly grateful that her mom and…
According to a story from kwqc.com, pediatric nurse Allee Mullen was devastated when her developing child was diagnosed with spina bifida, a rare and potentially debilitating birth defect. In order…
Sydney Mccallister is a 32-year-old woman diagnosed with spina bifida. Essentially, the condition means that the neural tube has not closed all the way during the first month of embryonic…
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Calls to Ban CRISPR A scientist named He Jiankui recently shocked the scientific world with his announcement that he had created twin “CRISPR babies”. The babies, a result of…
Three stories of courage are highlighted in Orlando Family Magazine’s annual tribute to the medical community. The first example relates to a mother, Eva, for her courage in opting…
Fetal Surgery for Spina Bifida Spina bifida is a rare condition which results in improper spine formation during embryonic development. A gap occurs in the vertebrae causing nerve damage in varying…
The Kids Wish Network (KWN) works to provide positive experiences for children age 3 to 18 who are living with life-threatening conditions. With the help of various sponsors, they are…
Kinetic Kids is a nonprofit which was originally formed to keep children who needed physical therapy active outside of their actual physical therapy sessions by giving them the opportunity to…
When a lot of people think of physical therapy, they think of rehabilitation to improve an injury or some type of ailment. However, the world of physiatry is much broader…
According to a story from BBC, there are only around ten people in the world who are currently living with a replacement bladder that was derived from their own cells.…
According to a report by CTV News of Calgary, a new trial program is attempting to make transitions easier for people living with chronic conditions. Specifically, the program hopes to…
According to a story from Global Knock, a woman with spina bifida died after a severe bedsore on her back became infected. Chrissy Dunnington was in long term care at…
Janet Williams was prescribed Epilim for seizures while she was pregnant. Now her two sons, Lee and Phillip, who are both in their twenties, have health issues related to the…
A new device to treat incontinence is being developed by Peter Sayet at Precision Medical Devices Inc., reports the Orlando Sentinel. Incontinence is the term used when people pass urine…
10-year-old Shayleigh Davidson visited her sister in the hospital a lot during the last five years. Her sister, Anai, is five years old, diagnosed with spina bifida and hydrocephalus. Spending…
Two-year-old Jeremiah Nelson, born with a condition called spina bifida, has very limited mobility. However, a Michigan high school’s robotics team has decided to help the toddler get moving. Forgoing…
According to a story from Business Wire, there was a time when having to use a mechanical ventilator in order to breathe meant being confined at the hospital in an…
Researchers at UC-Davis Veterinary Medical Teaching Hospital look to utilize dogs and cats to help find rare disease treatments, reported The Daily Beast. Recently, two bulldogs, Darla and Spanky, with…
According to a story from BBC News, a total of around 20,000 people in the UK were born with spina bifida and major brain damage after their mothers were given…
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