For over 20 years, CureDuchenne, a Patient Worthy partner and global nonprofit, has moved steadfastly forward with a mission to find, and fund, a cure for individuals with Duchenne muscular dystrophy (DMD), a rare genetic disorder. One of nine forms of muscular dystrophy, DMD is characterized by an inability to make dystrophin in the muscles. As a result, muscles weaken and eventually progress to heart and respiratory weakness, as well as quadriplegia.
Transforming the treatment landscape and finding a cure isn’t easy; it requires hard work, funding, and the support of an amazing community. That’s why CureDuchenne is so committed to ensuring that every member of its team is driven by its mission.
Joining the CureDuchenne Team
On January 22, 2024, CureDuchenne shared that Patricia Brown, MBA, BSN, RN was joining the team as Senior Director of Community Engagement. Brown brings significant healthcare experience to CureDuchenne; her background in healthcare and advocacy spans more than 15 years. She comes to the team from PTC Therapeutics, where she worked as Associate Director of Patient Engagement North America. Within that position, Brown supported families affected by DMD, as well as orchestrated cross-functional collaborations to initiate solutions to solve care disparities.
Her prior experience as Senior Nurse Manager at Lash Group further underscores her capabilities; she was instrumental in crafting and executing pharmaceutical clinical support services for approved treatments.
As the Senior Director of Engagement with CureDuchenne, Brown will continue building her impact in the DMD space. Brown will identify ways to improve the lives of those within the DMD community, contribute to raising awareness on community needs and research, connect families with therapists who fit their needs (CureDuchenne launched fantastic PT and OT certification programs), and build relationships with other stakeholders, such as physicians, researchers, organizations, and caregivers.
We are excited to see the impact that Patricia Brown has on the CureDuchenne mission and congratulate CureDuchenne on their continued efforts to improve patient and family lives.
Learn more about CureDuchenne here.
