March is Multiple System Atrophy Awareness Month

Researchers worldwide spend years studying various aspects of a disease searching for a cure with help initially from public and private sectors. The primary source of the funding is usually through family and friends of the patient. Without continued awareness and dedication, that research cannot continue to full fruition.

March is Multiple System Atrophy (MSA) Awareness Month, providing an opportunity to raise awareness about the importance of early diagnosis. It is especially important to use this opportunity to support caregivers and their patients who feel isolated when faced with a rare and thus far incurable disease.

The MSA Community Needs Your Support

MSA is a rare disorder affecting the nervous system causing damage to the nerve cells of the brain. From its inception, the MSA Coalition has devoted its efforts to an improvement in quality of life for MSA patients and being supportive in areas such as:

• Providing compassion and emotional support
• Providing credible and relevant information to patients, caregivers, and healthcare professionals
• Unifying people affected by MSA through its worldwide community
• Funding collaborative research with the goal of mitigating symptoms, reducing disease progression, and finding a cure

The MSA Coalition has several major goals that include improving the quality of life, expanding access to the care, and support of patients, while at the same time advancing research toward treatment.

This is an open invitation to participate in opportunities in the MSA community.

To show support and get involved with some of the MSA Community activities such as:

• Participating in MSA Myths vs. Facts -The Challenge (search MSA Connect) on Monday March 18th through Friday, March 22nd
• Check: (MSA) Clinical Trial Round UP Wednesday, March 27th 12:00pm EDT
• Utilize the March MSA Awareness month to make a contribution or start a fund raiser to encourage your social circle to join the MSA mission
• Test your MSA knowledge on Friday, March 15th at 12:00 EDT
• Join in an MSA Live Q&A Monday, March 18th at 12:00 EST
• Connect with MSA on social media

Or share your stories on:

• MSA Awareness Month Shareable Graphic
• MSA Informational Brochure (PDF)
• What is Multiple System Atrophy? (YouTube Video)

You have the power to help. You can share your story and tell people about MSA. You can learn from others in the MSA community.

Rose Duesterwald

Rose Duesterwald

Rose became acquainted with Patient Worthy after her husband was diagnosed with Acute Myeloid Leukemia (AML) six years ago. During this period of partial remission, Rose researched investigational drugs to be prepared in the event of a relapse. Her husband died February 12, 2021 with a rare and unexplained occurrence of liver cancer possibly unrelated to AML.

Follow us