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Daily Archives: June 17, 2025

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Understanding Prader-Willi Syndrome: Insights from the TREND Community (Part 2)

Understanding Prader-Willi Syndrome: Insights from the TREND Community (Part 2)

  • Post author:Bree Clare
  • Post published:June 17, 2025
  • Post category:Prader-Willi Syndrome

For Part 1 of this series provided to you by TREND Communities, please click here. On July 10, 2024, TREND Community released an impactful new report titled “Prader-Willi Syndrome: Perspectives…

Continue Reading Understanding Prader-Willi Syndrome: Insights from the TREND Community (Part 2)
Joburg Woman Walks 35 Days to Cape Town, Raising Rare Disease Awareness for Her Husband

Joburg Woman Walks 35 Days to Cape Town, Raising Rare Disease Awareness for Her Husband

  • Post author:Bree Clare
  • Post published:June 17, 2025
  • Post category:Myasthenia Gravis

In an inspiring act of love and advocacy, Joburg resident Nthabiseng Mokoena has completed a remarkable 35-day walk from Johannesburg to Cape Town to raise awareness for a rare disease…

Continue Reading Joburg Woman Walks 35 Days to Cape Town, Raising Rare Disease Awareness for Her Husband
Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2

Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2

  • Post author:Patient Worthy Contributor
  • Post published:June 17, 2025
  • Post category:Breast Cancer

Editor’s Note: This is the second part of an ongoing story. The third and final part will be published Tuesday, June 25th. To read part one, click here. The initial…

Continue Reading Sebastien Recalls His Mother’s Breast Cancer Journey – Part 2
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here
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