Editor’s Choice: Rare Disease Adults and Other Stories

Happy Thursday!

This week we’re highlight a variety of articles. First, we’re starting with a strong call-to-action from contributor and advocate, Sharon. Next, we have an article about rare disease policy in India, nonprofits working on ovarian cancer, and a shift to at-home medical care.

Sit back and enjoy this week’s Editor’s Choice.

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Opinion: Adults are 50% of Rare Disease Patients— Let’s Start Acting Like It

 

We had the honor of speaking with Anna, a woman with SMA advocating for those with disabilities.

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Two Nonprofits Partner For Ovarian Cancer Support Program

 

One nonprofit can do great work– but two working together is even more powerful!
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India’s Policy for Rare Disease Treatment Mired in Legal Gridlock

Disagreement in India’s political system is keeping rare patients from getting the treatment they need.
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In-Patient Hospitalization vs. At-Home Programs: Will Doctors Be Making House Calls Again?

Are at-home programs a thing of the past? For some people, this may be a better way to see doctors.
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Do you have a rare disease experience of your own? Share with us here.

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