Von Willebrand disease (VWD) is a rare disease that affects up to 1% of the population in the United States.
It occurs when the blood is missing an essential protein that aids in clotting. Often times people do not know they have this genetic condition and remain undiagnosed until they have a severe bleeding event.
One prime example is Alexandra Schultz who was not aware she had von Willebrand Type 1. She was not diagnosed until after years of suffering from heavy bleeding from her menstrual cycle and bruising easily. For women, heavy and long-lasting menstrual periods are markers for the disease.
In addition, those diagnosed with VWD have frequent nosebleeds and bleeding gums after brushing their teeth. Unlike other types of bleeding disorders, both men and women are at risk for this condition. Like Alexandra, those diagnosed with the disease easily develop unexplained bruises.
If left untreated, spontaneous bleeding can occur in joints or muscles. This is for those with a severe form of the disease. Dr. Brome, who specializes in hematology and oncology, states that people with VWD often have bleeding in multiple sites.
Dr. Brome also states that knowing the diagnosis is very important for everyone. If you are not aware that you have VWD, then you can suffer from serious bleeding complications. Once the diagnosis is confirmed, then a treatment program can be designed to lessen the risks of severe bleeding.
By working with a specialist Alexandra was able to learn more about VWD and has seen improvements in her condition. Click here to read more.
