#Throwback to This Movie Theatre Making Things Right for Boy with Tourettes
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#Throwback to This Movie Theatre Making Things Right for Boy with Tourettes

Last year, then sixteen-year-old Joshua Martineau who has Kabuki syndrome and Tourette syndrome, had a challenging experience at his local Cineplex. According to ChCh, Joshua was excited to celebrate his birthday. He…

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New Study of Trigeminal Neuralgia (TN) Often Preceding a MS Diagnosis
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New Study of Trigeminal Neuralgia (TN) Often Preceding a MS Diagnosis

Trigeminal neuralgia (TN), or extreme, sudden facial pain associated with the 5th cranial nerve, occurs frequently in patients who have received a multiple sclerosis (MS) diagnosis. In a survey with 8,590 respondents,…

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Innovative Pill Relieves “Suicide Headache” For Trigeminal Neuralgia
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Innovative Pill Relieves “Suicide Headache” For Trigeminal Neuralgia

Those who have received the diagnosis of trigeminal neuralgia can experience sudden pain in the jaw, cheeks, and forehead. This pain can last seconds to a few minutes. Some people with…

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Young Student with TSC Inspires Congressman on Trip to Capitol
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Young Student with TSC Inspires Congressman on Trip to Capitol

Abigail, a fifth grade student, originally took a trip to the Capitol to advocate for more research on tuberous sclerosis complex (TSC). The trip had unexpected results. As the Daily…

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Boy with SMA Chosen as State Ambassador for Muscular Dystrophy Association
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Boy with SMA Chosen as State Ambassador for Muscular Dystrophy Association

According to Seacoast Online early this year, Cohl Capparelli was diagnosed with spinal muscular atrophy (SMA) about two years ago. SMA is one of the diseases that the Muscular Dystrophy Association…

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You Won’t Believe Kumail’s Success with SMA Drug Spinraza!
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You Won’t Believe Kumail’s Success with SMA Drug Spinraza!

Kumail was diagnosed with spinal muscular atrophy (SMA) and started Spinraza in an international trial. As The Herald Sun reports, he began the treatment at six weeks old before he…

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Cure SMA Produces a Booklet on Insurance Coverage to Help You
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Cure SMA Produces a Booklet on Insurance Coverage to Help You

Some good news for patients with Spinal Muscular Atrophy (SMA) and their families! There's a new booklet out with detailed information on how to navigate the increasingly complex health insurance…

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IPF Patients, Caregivers! Use This Free Online Educational Program!
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IPF Patients, Caregivers! Use This Free Online Educational Program!

“Idiopathic Pulmonary Fibrosis: Partnering with Your Doctor,” is an interactive program for people diagnosed with idiopathic pulmonary fibrosis (IPF) and their caregivers. And you know what's even more awesome about…

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Super-Refractory Status Epilepticus: Could a Ketogenic Diet Help?
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Super-Refractory Status Epilepticus: Could a Ketogenic Diet Help?

Status epilepticus is a rare and sometimes fatal condition. About 60 percent of those with this super-refractory status epilepticus (SRSE) die, making it the most dangerous type of seizure. This…

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