Cystic Fibrosis
Common Antifungal Drug Shows Promise in Treating Cystic Fibrosis
Cystic Fibrosis Cystic Fibrosis (CF) is a rare disease caused by a defected CFTR gene. It results in a buildup of mucus which impairs breathing
Rare Patient News. Well Done.
New Phase 2/3 Clinical Trial for Liver Disease in Alpha-1 Antitrypsin Deficiency Should be Coming Soon
- March 22, 2019
The State of Antiphospholipid Antibody Syndrome Research
Recent Discovery Suggests an Autoimmune Origin for Narcolepsy
Study Indicates Safety of New Potential Treatment for Swallowing Dysfunction in Kennedy Disease
LATEST PATIENT WORTHY ARTICLES
Moebius Syndrome
A Moebius Syndrome Story: An Unexpected Love that Crossed the Atlantic
Alex Barker never planned on marrying someone with his same rare diagnosis, but he has to admit, the shared experience has made him and his
Adenocarcinoma of lung
New Partnership will Improve and Accelerate Patient Involvement in Lung Cancer Research
Pattern.Org Pattern.org was created by the Rare Cancer Research Foundation, a nonprofit dedicated to improving the lives of rare cancer patients by accelerating research. Pattern.org
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Parkinson's Disease
Parkinson’s Patients May Benefit from Deep-Brain Stimulation (DBS)
A recent article in Parkinson’s News Today reports that a reduction in a patient’s required medication and management of motor system disorders may be achievable
Ankylosing Spondylitis
New Biosimilar Product to Humira Could Be Cheaper and Just as Effective for Ankylosing Spondylitis Patients
The most common treatment for autoimmune conditions such as ankylosing spondylitis, plaque psoriasis, Crohn’s disease, juvenile idiopathic arthritis, and rheumatoid arthritis is currently a drug
Ocular Melanoma
New Bill Proposed to Fund Research for Ocular Melanoma Mystery in North Carolina
“Something’s just not right – this is beyond coincidence.” Ocular Melanoma is a rare cancer which only affects 5 out of every one million people.
TRENDING NOW ON PATIENT WORTHY
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