LATEST PATIENT WORTHY ARTICLES

UPCOMING EVENTS

  1. The Ehlers-Danlos Society’s Learning Conference Australia

    December 10 - December 11
  2. The EveryLife Foundation for Rare Diseases’ Newborn Screening Webinar

    December 13 @ 2:00 pm - 3:00 pm
  3. NCSG Annual Conference 2019 – Pinehurst, NC

    February 16, 2019 - February 17, 2019
  4. The Coalition for Hemophilia B’s 2019 Annual Symposium

    March 14, 2019 - March 17, 2019
  5. The Acromegaly Community and Pituitary Society’s Joint Annual Conference

    March 20, 2019 - March 22, 2019

FOLLOW US ON INSTAGRAM

TRENDING NOW ON PATIENT WORTHY

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

© Copyright Patient Worthy

Close Menu