POTS
POTS and Vasovagal Syncope: A Patient Story
In January-March of 2015, I was the healthiest I’d ever been… or so I thought. I worked out, drank plenty of water, had a great
Rare Patient News. Well Done.
Study Finds That BRAF Inhibitors Could be an Effective Treatment for Some Ovarian Cancer Patients
- August 18, 2018
The Burden of PKD: A Patient Story
So Why DOES Canada have Scarcer Access to Rare Disease Therapies?
Pediatric Cancer Rates are Highest in the Northeast, But No One Knows Why
LATEST PATIENT WORTHY ARTICLES
Alport syndrome
Alport Syndrome Patients Met With the FDA About Drug Development
According to a story from PR Newswire, patients with Alport syndrome, supported by the National Kidney Foundation and the Alport Syndrome Foundation, were involved in
Myelodysplastic syndromes
Free MDS Event in Ohio!
Our partner, the MDS Foundation, is sponsoring another free event for patients and caregivers. Event Summary: Whether you are a newly diagnosed patient, a long-term
Brain Cancer
Treatment for Childhood and Spinal Cord Cancer Linked to Lower Levels of Independence for Survivors
The survival rates for infants and children with brain and spinal cord cancer has improved significantly over the past decades. However, a study published
Hereditary Angiodema
Rare Disease Treatments Cleared For Coverage on NHS Scotland
According to a story from Pharma Times, four new medications were recently approved for coverage on the Scottish NHS by the Scottish Medicines Consortium (SMC).
Progeria
How a Progeria Affects a Family in Habiganj
Nitu is eleven years old. She lives in Shayestanagor in Habiganj (a region within Bangladesh). While most 11-year-old children are full of energy, Nitu must
TRENDING NOW ON PATIENT WORTHY
POTS and Vasovagal Syncope: A Patient Story - Community Spotlight, POTS, Vasovagal syncope
A Historic New Discovery Could Have Major Implications for Cystic Fibrosis - Cystic Fibrosis, Rare disease, Research
Teenager with Rare Disease Treks Across the Country with a Very Important Message - Primary periodic paralysis, Rare disease, Ride for Rare Diseases, Sponsored
A Woman With Vulvar Cancer Has a Terminal Prognosis. Now She is Spreading Awareness - Community Spotlight, Lichen Sclerosus, Vulvar cancer
Study Finds that Prognosis for Systemic Sclerosis can be Predicted with this Simple Test - Rare disease, Research, Scleroderma, Systemic sclerosis
The Dos and Don'ts of Exercising with Ehlers-Danlos Syndrome - EDS, Ehlers-Danlos syndrome, Hypermobility, Opinion, Resource
How Getting Diagnosed With POTS Changed My Life: A Patient Story - Community Spotlight, Dysautonomia, POTS, Rare disease
10 consejos alimenticios para el Síndrome de Sjögren - Anti-inflammatory diet, Espanol, News, Rare disease, Sjogren's
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