Achalasia
“Lead the Way” with Dustin Chapman
At the age of 18, I was diagnosed with a rare swallowing disorder called Achalasia. At the time of this video, I had undergone several
Becky’s Journey with Metastatic Colon Cancer
Wegovy Linked to Normal Liver Fat Levels in Small Analysis of Adults With Obesity
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THE LATEST FROM PATIENT WORTHY
Duchenne Muscular Dystrophy
A New App for Duchenne Muscular Dystrophy Caregivers
In honor of World Duchenne Awareness Day on September 7th, Mal Duffin has invited us to share this app designed for parents whose children are living
Pancreatic Cancer
FDA Authorizes Daraxonrasib for Metastatic Pancreatic Cancer After Positive Phase 3 Trial Results
As reported on World Pharma News, the U.S. Food and Drug Administration has granted approval to daraxonrasib, an oral RAS-targeting therapy, for adults with metastatic
Ebola
Ebola Continues To Be a Global Threat
A novel investigational Ebola vaccine has shown encouraging safety and immunogenicity results in a first-in-human clinical trial, supporting further development of an alternative vaccination strategy
Rare Disease
TAVR Is Reaching Younger Patients. What Happens Decades Later?
Editor’s Note: Patient Worthy is honored to share this article, originally written by David St. Denis, President & Director at Anteris Technologies. Transcatheter aortic valve
Huntington's disease
The Researcher Who Would Not Be Tested
Although Nancy Wexler’s efforts were largely responsible for creating a genetic test to locate the Huntington’s gene, she refused to take the test herself saying
Breast Cancer
Guardant360 CDx Approved as Companion Diagnostic for AstraZeneca’s Etcamah in ESR1-Mutated Breast Cancer
As reported on Fierce BioTech, Guardant Health has secured U.S. Food and Drug Administration approval for its Guardant360 CDx liquid biopsy test as the companion
Rare Disease
Dual-Drug Strategy Shows Promise Against Treatment-Resistant Prostate Cancer
As reported on Science Daily, researchers at the University of Michigan have identified a potential new therapeutic approach for aggressive prostate cancers that become resistant
Multiple Myeloma
BMS Achieves Milestone with Next-Generation CAR-T Therapy for Multiply-Treated Myeloma Patients
GPRC5D-Targeting Approach Positions Company to Expand Post-BCMA Treatment Options As reported on Fierce BioTech, Bristol Myers Squibb announced positive results from its pivotal Quintessential trial
Rare Disease
To Stand Beside Suffering
Editor’s Note: We’re honored to share the following article from our friends at the Courageous Parents Network. To see this article in its original format,
Pompe Disease
Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data
Editor’s Note: Patient Worthy is honored to share this article from Rareatives, originally written by our friend Jessica Lynn. To see the article in its
Colorectal cancer
When the Silence Got Loud
Editor’s Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea, originally written by Bill Phillips, a colorectal cancer
PTEN Hamartoma Tumor Syndrome
New PTEN Research Could Help Predict Cancer Risk in Rare Genetic Syndrome
A single genetic change can have dramatically different effects from one person to the next. That is the reality for people living with PTEN hamartoma
Diabetes Type 2
FDA Expands Mounjaro’s Label to Include Cardiovascular Risk Reduction in Type 2 Diabetes
As reported on QZ, the U.S. Food and Drug Administration has approved a new indication for Eli Lilly’s tirzepatide (Mounjaro), allowing the therapy to be
Polycythemia vera
FDA Clears Takeda’s Mimrylo for Polycythemia Vera, Introducing a Novel Treatment Option
As reported on MedCity News, the U.S. Food and Drug Administration has approved Takeda Pharmaceutical’s Mimrylo (rusfertide) for the treatment of erythrocytosis in adults with
Colorectal cancer
BioNTech Ends Phase 2 Trial of Personalized mRNA Therapy in High-Risk Colorectal Cancer
As reported on Drugs, BioNTech has decided to halt development of its Phase 2 BNT122-01 study investigating autogene cevumeran (BNT122/RO7198457) in patients with resected colorectal
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MASH can progress quietly, making awareness and early attention to liver health so important. Understanding your risk, staying informed and having conversations with your healthcare team can help you take a more active role in your health.
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A rare diagnosis can come with uncertainty, unanswered questions, and moments of feeling like no one else understands. But hope should never be hard to find.
Hope can live in new research, a community that understands, a doctor who listens, or simply knowing someone is standing beside you.
#raredisease #RareDiseaseAwareness #RareDiseaseCommunity #PatientAdvocacy #quote #inspirationalquote
This Breast Cancer Awareness Month, we're reminded that no one should face breast cancer alone. 💗
Connecting with patients in our communities, listening to their experiences, and supporting one another through every stage of the journey helps create hope, understanding, and strength.
If you are living with or have been impacted by breast cancer, we would be honored to hear your story. Your voice may inspire someone who needs it most.
🔗 Click the link below to share your breast cancer journey.
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