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Brain Cancer

Perpetually Healing

Editor’s Note: Patient Worthy is proud to share the following story from our friends at Elephants & Tea, originally written by Dillon Groover, a brain

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12 hours ago

October is Homocystinuria Awareness Month—a moment to recognize the individuals and families navigating life with this rare condition. Raising awareness can help more people understand homocystinuria, support those affected and encourage meaningful conversations with healthcare professionals. Take a moment this month to learn, listen and share so more people know the name and the community behind it.
#rarediseaseoftheweek #Homocystinuria #homocystinuriaawareness #rarediseaseawareness #RareDisease #RareDiseaseCommunity #PatientWorthy
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October is Homocystinuria Awareness Month—a moment to recognize the individuals and families navigating life with this rare condition. Raising awareness can help more people understand homocystinuria, support those affected and encourage meaningful conversations with healthcare professionals. Take a moment this month to learn, listen and share so more people know the name and the community behind it. 
#RareDiseaseOfTheWeek #Homocystinuria #HomocystinuriaAwareness #RareDiseaseAwareness #RareDisease #RareDiseaseCommunity #PatientWorthy
14 hours ago

Let's talk FSGS! This week, we're spotlighting this rare kidney disease through our website and social channels with real experiences, helpful info, resources, and more. Whether you're a patient, a caregiver, or just here to learn, follow along with us! Have a story to tell? Click here to get in touch: ow.ly/uJOJ510194Z
#focalsegmentalglomerulosclerosis #FSGS #kidneydisease #advocacy #PatientWorthy #shareyourstory
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Lets talk FSGS! This week, were spotlighting this rare kidney disease through our website and social channels with real experiences, helpful info, resources, and more. Whether youre a patient, a caregiver, or just here to learn, follow along with us! Have a story to tell? Click here to get in touch: https://ow.ly/uJOJ510194Z
 #FocalSegmentalGlomerulosclerosis #FSGS #KidneyDisease #Advocacy #PatientWorthy #ShareYourStory

Managing & Treating oHCM 💙
Living with obstructive hypertrophic cardiomyopathy (oHCM) can come with challenges, but there are treatment options available to help manage symptoms and improve quality of life. From medications to specialized procedures, treatment plans are personalized based on each person's needs, symptoms, and goals. Staying connected with your healthcare team and understanding your options can help you feel more confident in your care journey.
Click the link below to share your story today.
ow.ly/gyzR50ZZMLP
#oHCM #HypertrophicCardiomyopathy #HeartHealth #PatientEducation #PatientWorthy #HeartDiseaseAwareness #PatientVoice #ShareYourStory 💙
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Managing & Treating oHCM 💙
Living with obstructive hypertrophic cardiomyopathy (oHCM) can come with challenges, but there are treatment options available to help manage symptoms and improve quality of life. From medications to specialized procedures, treatment plans are personalized based on each persons needs, symptoms, and goals. Staying connected with your healthcare team and understanding your options can help you feel more confident in your care journey.
Click the link below to share your story today.
https://ow.ly/gyzR50ZZMLP 
#oHCM #HypertrophicCardiomyopathy #HeartHealth #PatientEducation #PatientWorthy #HeartDiseaseAwareness #PatientVoice #ShareYourStory 💙Image attachmentImage attachment+2Image attachment
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