Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
684 words, 9% matched vs 1,329 words, 4% matched Compassion [kuhm–pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Rare Bears started out as a small effort to support children with rare diseases. Now, it is a global non-profit that has an army behind
Charcot-Marie-Tooth disease (CMT) is associated with a number of genetic mutations. In fact, the different mutations signify specific CMT subtypes, such as CMT1 or
The month of June is recognized as Scleroderma Awareness Month, a time for spreading awareness about the rare disease scleroderma in the medical community and
For all the coffee lovers who drink as much coffee as I do each day, this one’s for you. Recently, a press release from the
Robbie Elliot’s family, who reside in South Shields, England describes him as a perfect boy with a bubbly personality, always giving, and with a special
Pfizer’s Regional President for Rare Disease, Reda Guiha, recently offered his opinion to The Parliament magazine about the urgency of what he refers to as
A recent study investigating treatment for adult acromegaly patients has revealed that switching from injectable somatostatin receptor ligands to oral octreotide leads to an improvement
Have you ever heard of base editing? This relatively new technology within the field of genome editing offers the potential opportunity to treat a variety
ACADIA Pharmaceuticals has released data on NUPLAZID, a selective serotonin inverse agonist and antagonist preferentially targeting 5-HT2A receptors. This treatment is meant to treat Parkinson’s
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