Narcolepsia: Mi Triste Abismo
Un rápido aumento de emoción, una simple risa o sonrisa envía a su cuerpo a una triste caída en espiral que lo lleva a un reino desconocido de oscuridad que…
Diagnosed with Type 1 Narcolepsy back in 2014, I had unknowingly been fighting the never-ending battle that is Narcolepsy dating as far back as 1999. Throughout the duration of my diagnosis I endured unruly mistreatment by medical professionals and helplessly watched others rob me of the option to pursue opportunities every person deserves to experience. In spite of all the setbacks, I have and continue to defy the stigma that comes with living with Narcolepsy and will not stop until there is a change in the status quo. As someone who has unknowingly experienced the disadvantages as a young adult living with Type 1 Narcolepsy, I strive to advocate for those who are also battling a disadvantage that makes living a life of independence next to impossible. To decrease diagnosis time it is crucial to spread awareness to those who are accountable for shaping future generations. In efforts to do so, I have made it my mission to work with congress as well as school district officials as an advocate for children and young adults living with Narcolepsy. I strive to work towards implementing legislation that will accommodate needs that are failing to be met when receiving a promised education. As of January 2020, diagnosed with Multiple Sclerosis. Advocacy Work Narcolepsy Network Patient Advocate for Rare Disease Week on Capitol Hill 2020 Patient Advisory Panelist for Harmony Biosciences Child Advocate and Coach at Brain Balance, a learning center that offers a holistic approach to treating children with developmental and learning disabilities. Personal Narcolepsy Advocacy Platform via Instagram @fitniknarcoleptic
Un rápido aumento de emoción, una simple risa o sonrisa envía a su cuerpo a una triste caída en espiral que lo lleva a un reino desconocido de oscuridad que…
This is part two of the story, click here to read part one After searching for a new neurologist, we found one only 30 mins away that was willing…
I want to start off by saying that the intention behind my words are not to convey or express any sort of anger, hatred, or resentment. I am choosing to…