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A Father Carries His Handicapped Son to School, This is the City’s Response

  • Post author:Patient Worthy Contributor
  • Post published:October 16, 2015
  • Post category:CAPS/FCAS/Rare Disease

Not long ago, I read an article about a heroic father’s quest to fight injustice for his son who is living with a rare genetic autoimmune disease called familial cold…

Continue Reading A Father Carries His Handicapped Son to School, This is the City’s Response

Would You Trust Complete Strangers With Your Life Like This Guy?

  • Post author:Patient Worthy Contributor
  • Post published:October 8, 2015
  • Post category:CAPS/FCAS/Rare Disease

So, let’s say you’ve lived most of your life with a bucket of symptoms you’ve never understood, and that doctors have never been able to diagnose. Symptoms like joint pain,…

Continue Reading Would You Trust Complete Strangers With Your Life Like This Guy?
Meme Monday: Raising Awareness for #CureforCaps

Meme Monday: Raising Awareness for #CureforCaps

  • Post author:Patient Worthy Contributor
  • Post published:October 5, 2015
  • Post category:CAPS/FCAS/Muckle-Wells Syndrome/Neonatal onset multisystem inflammatory disease

After a great week of telling the honest stories of people living with invisible illnesses for invisible illness awareness week, we want to focus this Meme Monday on a group…

Continue Reading Meme Monday: Raising Awareness for #CureforCaps
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