This Organization is an Exemplar of Rare Patient Support
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This Organization is an Exemplar of Rare Patient Support

Every rare disease patient deserves an organization dedicated to working towards their specific condition. These organizations provide invaluable patient advocacy, information, support, and research funding for small communities that need…

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How to Stay Warm This Winter with CAPS
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How to Stay Warm This Winter with CAPS

Some auto-inflammatory disease symptoms are triggered by colder temperatures. Systemic Auto-inflammatory Disease Support (SAID) has several winter tips for people who suffer from these diseases. Examples of these diseases are…

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If Your Newborn Has CINCA, Then You Need to Read This
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If Your Newborn Has CINCA, Then You Need to Read This

According to a study published in Pediatric Rheumatology, treatment with anakinra early in the neonatal period (birth-28 days) was shown to be effective in treating CINCA (Chronic Infantile Neurological Cutaneous…

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Pfizer en proceso de licitación con el fabricante sueco de tratamiento para el NOMI

Parece que Pfizer quiere comprar una compañía sueca que proporciona un tratamiento para la enfermedad inflamatoria multisistémica de inicio neonatal, (NOMI). NOMI pertenece a una familia de enfermedades conocidas como…

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Consejos sobre cómo hacer que las inyecciones para su hijo no sean traumaticas

Los tratamientos para enfermedades autoinflamatorias comúnmente requieren un paciente para recibir inyecciones debajo de la piel, lo que puede ser difícil si usted es el padre de un niño pequeño…

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How To’s and More Tips On Making Your Child’s Injections Painless

Treatments for autoinflammatory diseases commonly require a patient to receive injections under the skin, which can be tricky if you are the parent of a small child (or large husband) who…

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Editor’s Choice Weekend Roundup: Meme’s, Viral Videos, and More!

We've seen great memes from the community, an awesome mom who is trying to raise awareness for CVID through a viral video, and so much more. Check out the highlights…

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Pfizer Bids For Swedish Maker of Treatment for NOMID

Looks like Pfizer wants to buy a Swedish company who provides a treatment for neonatal-onset multisystem inflammatory disease, (NOMID). NOMID belongs to a family of conditions known as Cryopyrin-Associated Periodic…

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