Rare Patient Spotlight: Young Woman Stays Strong in the Face of CMT
Sarah M kayaking.

Rare Patient Spotlight: Young Woman Stays Strong in the Face of CMT

In collaboration with the Hereditary Neuropathy Foundation (HNF), Patient Worthy asked members of the Charcot-Marie Tooth (CMT) community to tell us their stories, in hopes of inspiring everyone in the rare community…

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Editor’s Choice: Rare Adolescence, Rare Parenting and Rare… CEOing

Happy Memorial Day Weekend Patient Worthians! This week we have an inspiring interview with the CEO and Founder of the Hereditary Neuropathy Foundation. We also have a motivating story on a cheerleader battling Friedreich's…

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Cancer Survivor, Chronic Illness Patient, CEO, and Mom: How Allison Balances a Busy Life
Allison. Being an all-star.

Cancer Survivor, Chronic Illness Patient, CEO, and Mom: How Allison Balances a Busy Life

Moms: The ultimate multitaskers. Whether they're stay-at-home moms or working mom, these strong ladies have a way of getting stuff done, come hell or high water - or a chronic…

Continue Reading Cancer Survivor, Chronic Illness Patient, CEO, and Mom: How Allison Balances a Busy Life