2019 United Leukodystrophy Conference Highlights

Patient Worthy had the privilege of attending another United Leukodystrophy Conference. The ULF’s 2019 event took place at the end of June in Illinois and had a record setting number…

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Recent Discovery Finds a New Genetic Basis for Leukoencephalopathy

According to a story from The McGill Tribune, a little girl named Mathilde Poliquin recently died at the Montreal Children's Hospital. She was only two and half months old and…

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Cause of Rare Form of Pediatric Leukoencephalopathy Discovered

A Collaborative Effort An international team of researchers has just uncovered the genetic cause for an ultra-rare form of leukoencephalopathy. Leukoencephalopathy refers to a family of conditions which affect the…

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