Loeys-Dietz syndrome

Rare Community Profiles: How Two Participants Found Connection and Support at the Marfan Foundation’s 2024 Global Virtual Conference
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Rare Community Profiles: How Two Participants Found Connection and Support at the Marfan Foundation’s 2024 Global Virtual Conference

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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World Pneumothorax Day 2024: Spreading Rare Disease Awareness
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World Pneumothorax Day 2024: Spreading Rare Disease Awareness

June 24, 2024 is being recognized as World Pneumothorax Day, a time for spreading awareness about pneumothorax among the general public and in the medical field. Pneumothorax is a condition…

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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up
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On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

Education, research, support, and patient advocacy: these are just four of the amazing things that rare disease or disorder foundations offer. Many foundations seek to offer programs and resources to…

Continue Reading On July 1, the Marfan Foundation and Loeys-Dietz Syndrome Foundation Will Officially Partner Up

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