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mastocytosis

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We Wish DCM Would Walk the Plank Already!
https://pixabay.com/en/child-boy-pirate-furious-one-332985/

We Wish DCM Would Walk the Plank Already!

  • Post author:Erica Zahn
  • Post published:January 17, 2017
  • Post category:mastocytosis/Rare Disease

Mast cells are produced by bone marrow and are part of all tissues in the body. They are regulators of the immune system that contain storage sacs that contain active…

Continue Reading We Wish DCM Would Walk the Plank Already!
Editor’s Choice: Doctors Get Sick Too

Editor’s Choice: Doctors Get Sick Too

  • Post author:Patient Worthy Contributor
  • Post published:December 2, 2016
  • Post category:Ankylosing Spondylitis/mastocytosis/Myasthenia Gravis/Rare Disease/Tourette syndrome

Happy December Friends! Ah, the week after Thanksgiving is always easy for me knowing Christmas is just a few weeks away! This week, we have a story about a doctor with…

Continue Reading Editor’s Choice: Doctors Get Sick Too
Maybe You’ll Be Amazed When You Learn About Mastocytosis
Source: pixabay.com

Maybe You’ll Be Amazed When You Learn About Mastocytosis

  • Post author:Erica Zahn
  • Post published:November 18, 2016
  • Post category:mastocytosis/Rare Disease

Mastocytosis is a rare immune disorder that is broken down into two categories: cutaneous (CM) systemic (SM) It affects men, women, and children in equal numbers. Children are more likely to have…

Continue Reading Maybe You’ll Be Amazed When You Learn About Mastocytosis
Mastocytosis is the Itchiest Disease You’ve Never Heard of

Mastocytosis is the Itchiest Disease You’ve Never Heard of

  • Post author:Erica Zahn
  • Post published:November 2, 2016
  • Post category:mastocytosis/Rare Disease

Have you ever noticed when you have a cut, and it's healing, you sometimes feel itchy? Those are the mast cells helping your body to heal while helping defend against…

Continue Reading Mastocytosis is the Itchiest Disease You’ve Never Heard of
If Happiness Is Being Mother to Twins, Here’s How AML and Mastocytosis Are Conjoined!

If Happiness Is Being Mother to Twins, Here’s How AML and Mastocytosis Are Conjoined!

  • Post author:Alisha Stone
  • Post published:May 11, 2016
  • Post category:mastocytosis/Rare Disease

What’s it going to take before an effective treatment gets approved by the FDA for acute and aggressive mastocytosis? Well, hopefully the mastocytosis community won’t have to wait too long! In…

Continue Reading If Happiness Is Being Mother to Twins, Here’s How AML and Mastocytosis Are Conjoined!
How The French Are Coming To Save Your Life

How The French Are Coming To Save Your Life

  • Post author:Alisha Stone
  • Post published:April 18, 2016
  • Post category:mastocytosis/Rare Disease

Well, the French are at it again—thank goodness! French pharmaceutical company AB Science, announced in 2015 that it hit its endpoints in a phase lll clinical trial for human subjects who…

Continue Reading How The French Are Coming To Save Your Life
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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