Finding an Effective Personalized Therapy for Mastocytosis can be Frustrating, but it is Possible

What Exactly is Mast Cell Disease According to The Mastocytosis Society (TMS), there are three forms of mast cell disease. All involve the malfunction or over-development of mast cells in…

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Accidental Discovery Gives Insight into New Potential Method of Diagnosis for Mastocytosis

Mastocytosis Mastocytosis is a rare disease caused by mutations in the KIT gene. The condition causes mast cells to accumulate in the body. Depending on the location of these immune…

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New Phase 1 Clinical Trial for Mastocytosis, MDS, and AML has Just Begun!

GT Biopharma has just announced that their Phase 1 clinical trial for Mastocytosis, Myelodysplastic Syndrome (MDS), and Acute Myeloid Leukemia (AML) has been authorized to begin. Although this investigation had previously…

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Mutations are the Key to Predicting Outcomes in Myeloproliferative Neoplasms, Study Says
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Mutations are the Key to Predicting Outcomes in Myeloproliferative Neoplasms, Study Says

According to a story from Cure Today, a recent study has found that identifying mutations in patients with myeloproliferative neoplasms may be the key in predicting outcomes, such as disease…

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Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story
Photo courtesy of Lindsay Fogarty

Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay’s Story

My name is Lindsay Fogarty. I am a 25-year-old single mother to a wonderful 6, almost 7-year-old son, named Andrew. As I am writing this I am listening to the…

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The Mastocytosis Society Hosts Support Group Meetings Around the Country
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The Mastocytosis Society Hosts Support Group Meetings Around the Country

The Mastocytosis Society is an amazing organization that brings focus to patients with mastocytosis and mast cell activation diseases. They hope to bring awareness, as well as education to patients,…

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If Happiness Is Being Mother to Twins, Here’s How AML and Mastocytosis Are Conjoined!

What’s it going to take before an effective treatment gets approved by the FDA for acute and aggressive mastocytosis? Well, hopefully the mastocytosis community won’t have to wait too long! In…

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