Editor’s Choice: Rare Patient Innovation and Support

Happy Thursday everyone!

This week, we’re highlights two stories about patients taking action to solve problems in their life: one patient innovates to improve their care, and another starts a rare support group. We also have an article about increasing MS treatment prices, and news about research into the origins of Parkinson’s disease.

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Ulcerative Colitis Patient has Invented a New Device Which Could Improve Care for Many

Who knows what patients need better than patients themselves?

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Study Finds Prices for Multiple Sclerosis Drugs are Going Up: We Need to Do Better

Not only is this prices increase a burden for patients, but it jeopardizes their access to necessary care.

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After Facing Her Son’s Diagnosis, This Mom Started a PFIC Support Organization

When your child has a rare diagnosis, it may be hard to find other who can relate to your journey. This mother took matters into her own hands,

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Some Researchers Believe Parkinson’s Disease May Begin in the Gut

The gut impacts many functions of the body… and potentially plays a big role in Parkinson’s.

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Do you have a rare disease experience of your own? Share with us here.

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